Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

qveenofthecastles

Updated 1y ago

Questions about Sjogren's Syndrome and Chronic Neck Pain

I have a few questions... 1 - what made your doctor diagnose you? (symptoms, blood work, etc) 2 - does anyone here have a sjogrens diagnoses WITHOUT another autoimmune issue (Lupus, RA, etc)? 3 - anyone have chronic neck pain specifically?

Can you help? Connect today

avatar

karinad

2y

1) blood work and symptoms, 2) no, 3) yes, working with chiropractor and dietitian to address it
avatar

karinad

2y

Also, I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5
avatar

Doglover25006

2y

1- bloodwork and symptoms my bloodwork came back negative but doc diagnosed me anyway based on symptoms not everyone’s bloodwork is positive it can rule sjogrens in if you test positive but bloodwork alone can’t rule it out. Some docs also want to do lip biopsy but mine decided it wasn’t necessary to do 2-yes sjogrens is my only autoimmune I do have a lot of other health conditions though including fibromyalgia and a dozen or so others 3- yes working with chiropractic acupuncture massage and physical therapy on this I’ve had it for decades even before I got sick
avatar

TrixNY

2y

1) monitoring blood work over time. My first tests came back ANA positive, and sedimentation rates gradually worsened. 2) no. I have sjogren’s and they still won’t say after 4 years if my other symptoms (joint pain, GI issues, hair loss, etc) are SLE or MCTD. I have all the lupus symptoms except the butterfly rash, but it often takes years for a diagnosis. 3) my worst joint pain is hips, wrists and elbows. No upper neck, but I’m sure it’s on its way!
avatar

Kikwi

2y

1) blood work 2) yes Sjögren’s is my only one officially 3) mine just started a few months ago 😭
avatar

Bubba_Jones

2y

1- blood work and lip biopsy. Tests were done due to exaggerated fatigue and joint pain that moved around. 2- I currently do not have another autoimmune diagnosis but there are two others in my family’s history. 3- I do have chronic neck pain but it’s due to a congenital defect.
avatar

Aquamarine

2y

1) I had had symptoms for years but they were never recognized as Sjogrens. Finally, my parotid glands swelled up and that was my huge red flag that started serious testing. Ultimately was diagnosed via history of symptoms and bloodwork. 2) I do not have any other autoimmune diseases, just primary Sjogrens 3) have had chronic neck and back pain for many years since my diagnosis. Have been to chiropractor and PT. Best advice is to keep moving and stretching throughout the day, especially if you work on a computer! Get yourself a tens unit, some bio freeze, and a heated neck wrap!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc