Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

PhDragon

Updated 1y ago

Looking for Support with Rare Genital Condition as a Non-Binary Trans Person

I was recently diagnosed with lichen sclerosus. since it is a rare disease I've had a hard time finding other patients to connect with. As a non-binary trans person, having a rare and chronic condition affect my genitals is especially distressing and I'm looking for anyone who shares that experience.

Can you help? Connect today

avatar

kila

2y

Well I have keloid skin, so I can relate with that. I had to get mine removed 3 times... im still nervous that it will grow back 😓
avatar

Mommy_Dearest

2y

I was diagnosed a few months ago. Using topical steroids a couple of times a week. Has greatly reduced the itching. Because of the cream, it has made me hesitate to be intimate with my partner. You?
avatar

Fiddle

2y

I am a new diagnosis too. I know it’s a rare disease, but more and more women are getting diagnosed with it. I am a part of the vulvodynia group on Facebook. I took notice there were a lot of women getting diagnosed now. I wondered if I had it, and low and behold. I do.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc