Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Cos

Updated 1y ago

Seeking Advice for Rare Migraine Condition

Has anyone had any additional tests done about the migraines or been to a neurologist not sure what direction to do since the condition is so rare. Thanks!!

Can you help? Connect today

avatar

Marmy5

2y

Do go to a neurologist. They know about such headaches. I was out in medicine and I rarely have those type of headaches now. When I do, I do have medication to help abort it. But on very rare occasions, I get it and I can’t speak, numbness around lips, just scares everyone.
avatar

Cos

2y

only my first one I couldn’t speak thankfully I only get them about once a year but that first one was scary but the numbness usually crawls from one of my hands to the side of my face It’s crazy
avatar

bluemoon

2y

I have hemiplegic migraines a few times a year, varying in frequency. I have notice a connection between hormone changes and the frequency of them. I have chosen not to seek medicine but have already had 4 this year. I have been to a neurologist and my normal doctor about them but haven't tried anything to avoid them. With how debilitating they are I have wondered if I should ask my doctor...
avatar

Mygirl2016

2y

Yes been going to a neurologist for about two years now been on two different medications… topi max had to be stopped because I lost a ton of weight to the point I was skin and bones now on gabepentin just started a month and a half ago I had two mris that showed chronic migraines I have hemeplagic migraines and have several and experience numbness to my right side and have fuzziness and dizziness with it
avatar

Joker907

2y

Found mine were from an open PFO(hole in the heart) had it patched.. way less migraines, but ones that I do have are monsters. Instead of 1 or 2 month long migraines 😩.. have at least 2 a month.. only last days..

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc