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Amethyst15

Updated 3mo ago

Considering Raynaud's Medication - Need Advice

What is the temperature like when you guys notice an attack? I’m thinking about mentioning to my doctor that I want to start a medication for my Raynaud’s but I’m worried I’m just being dramatic about it. I go to school somewhere warmer than where I grew up but my hands still hurt so much in the cold.

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Amethyst15

2y

Okay, thank you! For me, anything below 60 causes attacks but I’ve had pain at temperatures warmer than that. I never thought about the impact of my hands/feet being wet though. I’ll have to pay attention to that in the future! Thank you again!
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BJA

2y

72 or below
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Sarahwags

2y

Mine can be anything! I can be in a hot shower. It’s nuts. I guess mine is syndrome or disease - idk which - but the vessels clamp down and the spasms can come on anytime. Be careful w Raynauds - don’t be afraid to ask for meds. Mine went from a nuisance to blue hands in a matter of months. Then ulcers form and won’t heal without circulation. I came within days of amputation. Nifedipine and tadalfadil saved 2 of my fingers.
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QTpie7260

3mo

did these help your circulation? I have extreme pain in my fingers, hands and arms. Like they are dying. They have numbness, tingling, pins and needles most of the day now. But the worst symptom of them all is the extreme burning pain. Like someone put me into a fire to burn alive. Ice kinda helps. I notice it starts any temperature over 67⁰ but im in texas where it can be 100⁰ all summer and up to 125⁰. This causes me so much pain I cry and cry. I must take ice cold baths & use icepacks all day. Air conditioner cranked down as low as it will go. Most people complain cold triggers their pain.... but can heat cause pain too or would that be a different diagnosis?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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