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hinana's Post

hinana

Updated 1y ago

Struggling to Regain Strength After Lyme Disease

Hi… im (almost) 21 years old and i was diagnosed with Lyme when I was.. 17 i think. But my symptoms started when I was 12 and my mom thinks I was infected when I was 7. I was tested again last year and thankfully i don’t have Lyme anymore but a lot of the symptoms are still lingering… i danced competitively for a long time up until I was 12, and it was my whole life. My body simply couldn’t handle it anymore… it was really devastating. And now after all these years even though I’m better I still am in terrible shape when it comes to exercise. Everyone tells me that i just need to build up my strength but it’s really so much easier said than done. I can barely walk my dog without feeling like im going to pass out. Does anybody have any advice for gaining my strength back? TL;DR: i used to be in great shape before i got Lyme, now i don’t have it anymore but still can’t exercise without feeling like im dying

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SomethingCreative

I don't have much advice for gaining strength back, but I really relate to your post. I am 21 now and I've had it since I was 17 with several relapses and I'm still experiencing symptoms. The only trick I've found to really work in managing my symptoms is to try and relieve stress in my life. It doesn't make the symptoms completely go away but it makes them milder. Stress has also seemed to provoke my relapses, as they've all occurred after major stressful events in my life.

QuinnS

So, I don’t want to be the bearer of bad news but, a lot of the lymes tests will come back negative because the sneaky disease covers itself in protein so it remind undiscovered as it travels through your blood. You may be in remission for now which would be why your symptoms are present but not aggravated. I was on antibiotics thinking they kill lymes but it only treated it for awhile. I started going to nutritional response testing dictor. They actually completely got rid of it . I didn’t even need them to tell me that I can feel that it’s finally out of my brain. Anyway good luck on your journey! P.S. I used to dance too

hinana

@QuinnS I’ve actually never taken antibiotics for Lyme! I did something called SOT therapy which I still don’t completely understand… I definitely feel like the Lyme is gone but i am still anxious about it a little bit. A lot of people (even doctors) don’t think you can get Lyme where I live so it took a lot of searching to find something or someone that would help me. I mean genuinely I am doing a lot better right now compared to a few years ago in pretty much everything else but it’s just very hard to exercise and stuff (sorry if this doesn’t make sense)

QuinnS

Hinana, oh okay cool, I think I may have misunderstood your post. My bad! Glad it’s gone!

Greer

I had a similar experience with running, and mediation has really helped me! It wasn’t too much on my body with Lyme but it was enough to make me feel like I was doing something again.

Dynamic_Potato

I am in the exact same situation. I was a gymnast and fitness instructor, but now I have such bad fatigue some days that just walking feels like a huge feat. It’s definitely not about “building back strength,” the problem is that our bodies are not producing energy at the cellular level, and there’s always a root cause for that, whether it’s an infection, nervous system dysregulation, or inflammation, etc. the key is to figure out the root cause. For me personally I am suspecting bartonella infection

minionmaniac

If you're feeling like passing out a lot you may also have something called POTS (postural orthostatic tachycardia syndrome) that can be connected to Lymes. Maybe worth looking into?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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Struggling to Regain Strength After Lyme Disease