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gramps

Updated 1y ago

Reynaud's and Lupus: Seeking Advice

I haven't updated my profile yet. Think my Reynaud's may be associated with lupus. Is this something you have experience with?

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TreSc

2y

Yes. Experienced this before I was diagnosed with Lupus. Thought it was because I was anemic. My fingers are affected the most. And it can sometimes be hard to warm them up to get feeling back in them. People laugh at me sometimes because I wear gloves sometimes during the warmer months.
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gramps

2y

Thanks for your response! What are your Lupus symptoms and how did the diagnosis process go? Frozen fingers crossed I'm not dealing with it but it looks like a better explanation of my weird variety of symptoms than anything else.
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NicoleAS

2y

Yes, definitely related!
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TreSc

2y

My symptoms are constant pain, like I got hit by a truck tenderness/inflamation in my knees fingers, shoulders, hair loss, tired/exhausted even after resting most of the day, constant headaches, low grade fevers, numbness in legs and hands and fingertips (especially when cold)
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NicoleAS

2y

sounds just like lupus! Are you seeing a rheumatologist? I have a compounding cream that has vasodilator (blood pressure med but in cream) that I can use to help open the tiny blood vessels in my toes. I also took viagra (off label use prescribed by my primary dr) to help with blood circulation. 1 winter I developed diabetic type ulcers on my toes from lack of blood flow- that’s when I got the cream & viagra! Lol
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coffeemama

2y

I've been told I have Fibromyalgia for years. My doctor done some blood work a month or so ago and my ANA was abnormal. She's sending me to a rheumatologist to check for other possibilities. I have so many symptoms that indicate Lupus. They couldn't get me in until October! 🙄 What are your Lupus related symptoms?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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