Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

hello.its.me

Updated 7mo ago

Long-awaited Rheumatology Appointment for EDS Diagnosis

I finally have an appointment with a rheumatology consultant afterwaiting 5 years to be take seriously. hopefully I'll get the genetic testing I need for an EDS diagnosis. any tips on what to expect (uk)?

Can you help? Connect today

Your Alikes say
AI-generated answer based on the text from previous posts and comments

One of the replies suggests to write down every single strange thing that's happened to your body over the years before you go, present everything to them calmly and suggest EDS if it doesn't come up....See More

avatar

Sunflower.System

8mo

My rheumatologist wasn't able to push through genetic testing for me, they said I'd have to pay out of pocket. My primary care doctor was able to get the EDS testing for me somehow, I didn't pay anything.
avatar

Sunflower.System

8mo

I'm in the US so it's probably different

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc