I did salin only as part of my treatment for a year before getting my feeding tube. It kept me stable enough to keep me working. I still do Iv hydration as part of my overall plan with my TPN because I have a higher hydration need because I also have Addisons but I had to have my Endocrinologist and my gastroenterologist work together to form a plan.

Unicorn19 - did you like the saline?? How helpful was it for you

The infusions were very helpful when my POTS became unstable, I would not recommend them before medication is tried though

My sister does them almost weekly if not more If need be. Theyre life saving for her. I use liquid iv and salt tablets and that's been a big help for me

I do twice weekly saline as well, otherwise I feel awful. Meds and salt didn’t help a a ton either. Unfortunately the saline only lasts a 1-3 days in my experience but some people only need it weekly!

I do! I love it. Medication and salt don’t really do much so the infusions really help. I only do one every other week right now but I’m hoping to get them weekly since they work so well for me.

Unicorn19 - Yeah i’ve been on medication for a while now and they’ve even adjusted the dose and changed/added medication and it’s not doing much for me at all

Smash - I might talk to my cardiologist about them during my next appointment just to try them out and see how they go before committing to doing them more often