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Berry63's Post

Berry63

Updated 1y ago

Second guessing my APS diagnosis

Hey, so I was diagnosed with APS earlier this year based on one blood test that showed elevated antibodies. I got a second opinion from a hematologist who basically said that because I've never had a blood clot or miscarriage, I don't have APS. I'm still second guessing this because of the original blood test. Should I look into further testing to be sure? I don't like living in fear of potential clots.

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Hestia

I suggest you see a different hematologist. The most dangerous thing I’ve encountered in all of this has been medical professionals who think they are never wrong.

Berry63

i know me too, thank you for your advice!

TipsyFlamingo

I found out I have APS because of a miscarriage. I was told I have it, but don't meet clinical requirements to be treated for it during pregnancy (3+ miscarriages or a history of clots)

Leahness

I also have APS. It was discovered after I had a solid clot from my ankle to my groin and bi-lateral saddle PEs - all at once. I also had a hard time conceiving and staying pregnant (took a shot every week). Looking back, we now know it was due to APS, but we didn't know it at that time.

TNMAGNET

X3 miscarriages but 8 clots at once and a positive Lupus anticoagulant test to get the APS diagnosis had to have another positive test 12 weeks later which I did. It took 8 blood clots and a D-dimer of 1065 to get a diagnosis as was never investigated after miscarriages. Gynecologist and heamatogly also need to be reminded that women can be APS positive without being pregnant...

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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Second guessing my APS diagnosis