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LeonardMartin

Updated 1y ago

Seeking Advice for hEDS Symptoms and Rheumatologist's Response

I have multiple symptoms of hEDS, including hypermobility, joint instability, and chronic pain, but my after my rheumatologist told me I was hypermobile, he told me not to come back to him unless I had asymptomatic of rheumatoid arthritis. he also told me to take more Tylenol because it doesn't affect the liver(which I know is not correct). How should I move forward? I understand I probably need to find a new rheumatologist, but I'm not sure how to get more adequate testing done.

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Based on the experiences shared in the context, it might be beneficial to seek a second opinion from another rheumatologist or a geneticist. Geneticists can look for markers in your DNA that could ind...See More

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LeonardMartin

1y

Just looked at my record from the appointment, and he didn't even put the hypermobility in my record. On top of that, he put my beighton as a 2, when I know for a fact that it's at least a 6

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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