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Wanderinglumos

Updated 1y ago

Stomach Pain and Bloating with EDS and POTS

Stomach issues from EDS and/or POTS. I posted a while back about how I don’t eat or drink a lot bc of the bloating and fullness I get. This week I’ve started having pain, like a dull soreness (on my left side mostly) when I feel bloated/full. I’ve also been struggling with constipation and just overall feeling like I have no room in my stomach. Years ago I had pain and went to the ER who told me it was related to constipation. This feels a bit similar. But I’m curious if this is something others have had. I get nauseous but don’t throw up and I still make myself eat enough to be okay. It’s just uncomfortable I mostly snack a lot. Some suggested gastroparesis on my last post and it seems like I could check off a lot of those boxes. It seems to flare up like this but it’s not always this bad. Just looking to see if others experience this.

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Ballet_Bot23

1y

Hey I'm going through something similar. Sending hugs ❤️
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ZebracornV

1y

This is almost identical to what I’ve struggled with. Could be gastroparesis, but also could be MCAS. Have you been diagnosed with mast cell?
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Wanderinglumos

1y

thanks for your response. I have not been diagnosed with MCAS. Neither Mcas or gastroparesis have been mentioned at my dr appointments either. I’m still new to all this and figuring it out. I honestly don’t know much about mcas aside from it being common with pots and eds. I’ll look into it. Thanks.
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Trulyloved

1y

I’ve actually experienced the same things. It’s on my left side too. I’ve seen a gastrointestinal specialist, had 2 procedures done to figure out causation w/ no resolve. Wishing you the best & that they figure something out for you. If they do, pls share!
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Wanderinglumos

1y

thank you! I will be mentioning it to my doctor at my next appointment. I’ll let you know if I figure anything out.
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Arin922

1y

I get like this every once in a while as well. I was in a pain rehab clinic at mayo where they told us that smaller meals and snacking throughout the day can help. This might help if you are feeling full all the time
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SlothFan26

1y

I get this too. Could be GP, intestinal dysmotility, or could be other things like endometriosis, MCAS like some mentioned, or even vascular compressions
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kateafranklin

1y

I would definitely check out the Gastroparesis diagnostic criteria and pursue it. Sounds like you!
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Wanderinglumos

1y

thank you, I will!
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Teal100

1y

I have gastroparesis and intestinal dismotility. Which causes a lot of issues like that.
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Wanderinglumos

1y

thanks! I’ll look into it

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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