I was diagnosed with Necrotizing Myopathy Myositis in 2021, diagnosed with Diaphragmatic Paralysis on the left side of my diaphragm and lower left lobe atalactasis I had a Plication of the Diaphragm on July 1, 2024, contracted MSSA in my chest tube. Had a Thoracotomy on July 10, 2024, to wash my chest cavity out, scrape my lung, redid my Plication bands, and came home with 2 chest tubes. I have been in and out of the hospital for infection, severe bronchial spasms that cause coughing spells to the point of passing out, and it is awful. I use a walker and wheelchair at home when I need it. My strength is gone, and weakness is terrible. How is the quality of life for you? I have no doctors who know about this disease, It is rare and even more so in women. I have no help, no care plan, and I am just lost. Any help or advice I would be so grateful.