Struggling with hEDS Pain and Seeking Answers

Question/rant: I was diagnosed with hEDS but after a recent injury doctor's arnt sure and neither is my family. I don't know what's normal pain and what's not. my main question is, I don't even know where to begin to look for answers or if anyone experiences something similar to this. I call them flare ups and it's gotten to the point where I'm struggling mentally because of them. it's almost a bone deep pain throughout almost my entire body. my ribs, legs, arms, even can feel it in my toes when it's bad. How long it will last ill never know. some last a couple hours where some last for over a day(itll get better but not good). the pain and fatigue make it hard to even move at it's worst, sitting up is painful. these days arnt common but they happen. I'm working on maybe doing some more tests and setting up another appt with my doctor. it's just frustrating because I feel like I'm deteriorating and Noone can see it and I feel like I'm just getting worse. even if it's not good I just want some form of an answer. sidenote: these can happen randomly, be it weather or overdoing it with my body. this one was cause by me overdoing it. was trying to help out and such.