I will be the first to say you are not alone. We are here for you. What do you struggle with the most?

❤️ Thank you so much, I struggle with everything altogether pretty much, but the pots, really beats me up pretty roughly

The POTS is terrible for sure. People say the compression socks work but they don’t work for me. I take Midodrine and fludrocortisone for my heart rate. It helps me but everyone is a bit different.

The biggest thing is don’t wear yourself out too early in the day.

✋

Yes, I was taking propranalol but it turns out that I've started to develop some rash, so my doctor told me to stop taking it for now. I use to take midodrin and I was feeling so sick with my stomach. It was horrifying. I allso take pepsid and opramazol for the terible acid reflux. I do where spanks but it started to hurt my stomach, I have a hernia. I have a hiadle hernia.

Also forgot to mention that I take salt capsels as well.

Hey

Have you tried regular infusions? I know those help a lot of people with POTs!