Join a Community That Understands You

Get answers from those who share your health journey

All Posts

MarlissMae's Post

MarlissMae

Updated 1y ago

New to the group, looking for support with temporal lobe epilepsy

Hi I’m new here. I was diagnosed with temporal lobe epilepsy almost 7 years ago after 2 grand mal seizures. I’ve been on Keppra since then and have been completely under control until about a month ago. I started having auras early in the morning. Anyone else experienced this? Feeling alone.

Can you help? Connect today

LCM

I’m so sorry! Auras have always been scary for me. I don’t take keppra myself but I wonder if you can develop a level of tolerance to it? Also, I’ve found that taking more than one dose of ibuprofen or Tylenol consistently gives me auras, and so does any Benadryl. They all lower seizure thresholds but doctors literally never seem to know this smh

Momx3

I wasn’t aware of the ibuprofen thing but I stopped taking it quite a few years ago because I knew it made my heart race before my official diagnosis.

MarlissMae

I’m hoping that’s what happened. They increased my dosage and it’s still happening. They’re so scary! Thank you for the ibuprofen advice; I didn’t know this! I hope you are doing well :)

LCM

Fingers crossed! I always google whether or not any new over the counter medicine, supplement, prescription, or foods lower seizure threshold or interfere with my meds. You really have to be your own doctor/advocate sometimes which seriously sucks. But it’s why I like this app! Leveraging each other’s collective knowledge and experience can only help us.

MarlissMae

Thank you for the advice. Seems like even though I’ve had this almost 7 years I’m still learning. I find that after my auras my alprazolam helps a lot with the anxiety from it!

Begonia_Marie

Do you have a rescue med like Ativan or Valium? You should talk to your neuro abt having something on hand if you get an aura for preventing a seizure. Best of luck!!

reneekb

They always put you on keppra first, I have a cavernous malformation in my right temporal lobe. Giving me both grand mal and absent seizures. If there's any questions you have I'm more than willing to answer

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Free unlimited access

to all community content

Find others who are

medically similar to you

Pose questions and join

meaningful discussions

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

About Alike Wisdom Blog FAQ Editorial Team All Conditions All Posts All Communities Support

Your Privacy Stories Community Guidelines Terms of Use Privacy Policy Helplines Contact Us Group Chats Guidelines Moderation Process

Sign In

Join a Community That Understands You

Get answers from those who share your health journey

New to the group, looking for support with temporal lobe epilepsy