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crystalcat7

Updated 1y ago

Trouble getting Topamax/Trokendi XR from pharmacy

Has anyone else been experiencing trouble getting Topamax/ trokendi xr from there pharmacy? I had done all I could to attempt to get my medication before it was out. I then got a seizure due to it being out of course. I had been seizure free for almost 3 years..and not until now are my doctors giving me the generic. I just wish to know if it’s true that trokendi XR has had trouble in Florida for anyone else. I’m sorry for the rant. Thank you yo anyone that reads and responds 💜 Please take care ❤️

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I cannot find any specific information about trouble getting Topamax or Trokendi XR from pharmacies in Florida based on the provided context.

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Ireine

1y

I'm sorry to hear that you had a seizure after being seizure free for almost 3 years! That must have been so frustrating to experience 😕 I take the medication for migraines, but in the UK, we have also had supplier issues. Just before Christmas, my dad had to make a 4 hour round trip just to collect a prescription for me as nowhere locally had them stocked 🙄. I hope things resolve for you 🤞🏻
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sodapop425

1y

I am so sorry that this has happened to you. I have had no problems with getting my topamax, my insurance covers the name brand. My pharmacy is amazing and knows my medications and knows that if they are running low that they are going to need to order them soon for me. And this is not a small pharmacy, it is a large CVS. I am so sorry for you. Each pharmacy is different, I had a terrible experience at my local CVS, so I transferred all prescriptions to the CVS that my mom goes to 2 towns over and they have truly been amazing and so helpful. I would recommend calling pharmacys and letting them know when you have prescriptions coming through so if they need to order it, they can do it and it can come in a day or two. We really have to advocate for ourselves in medications that are potential lifesaving medications.
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crystalcat7

1y

Thank you so much for the help from both of you. My CVS is giving me topiramate (one month Topamax generic the next Trokendi generic). I don’t know how I feel bc every month I get a headache at the beginning and being told to take it at a different time than I used to really changed me. But thank you for your input and help. 💜 Hope you are all doing well, take care ❤️

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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