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starryinkynight

Updated 1y ago

Frustrated with Undiagnosed Autoimmune Disease Symptoms

im on my journey of being diagnosed with an autoimmune disease and feeling frustrated :(. ive been tested for all the common ones, + thyroid and rheumatoid test that came back negative. my only outstanding symptoms are hypermobility and joint pain, plus the normal keynotes of an autoimmune disease. is there anything specifically i should ask to test for? (i am a teenager, been testing since summer 2022)

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pianolover314

1y

I was pretty much this but I just got diagnosed with chronic pain syndrome and lipomas
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Leeeee

1y

Try searching about Ehlers-Danlos Syndrome, specifically the Hypermobility type. H-EDS is what I have and those are some of the things I experience too! It might not be that but it is worth a shot
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starryinkynight

1y

tysm!! ill ask my rheumatologist abt it next time i have an appointment
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Officialishness

1y

I would look into EDS (not just hypermobility, there are many many forms of EDS) and look into answers that may not be autoimmune. Lots of autoimmune symptoms are also associated with other illnesses, genetic disorders, and diseases - it’s important to look everywhere and exhaust all options from autoimmune to genetic and even less common causes such as environmental factors for symptoms. I hope you find answers 😢💕

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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