Before I had an official diagnosis I struggled with this a lot. I'm super young too so that didn't help. Young people are suppose to feel good and have energy. I didn't. I still struggle even with a diagnosis. Be kind to yourself ❤️ know that you are not lazy. Your body is different from others. You have to do what's best for you.

i have struggled with this a lot. my diagnosis currently is Juvenile Arthritis but my rheumatologist knows it’s going to end up being a form of lupus. i have almost even symptom. butterfly rash, hair thinning, joint pain, mouth sores, you name it. it almost feels invalidating. i know it’s not the doctors fault that my markers are negative but i always feel bad telling people i have lupus without the official diagnosis but i also know this is effecting me so much more than juvenile arthritis. i always feel like i’m not doing enough or not working hard enough for my age. a lot of that is really just from my head. i know i’m doing as much as i can but it always feels like i should be able to do more. i’m trying so hard to be patient with myself but it’s really hard when i can’t do everything i want to. i am always willing to talk about all sorts of stuff if you ever just need a friend!