Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

R2T2

Updated 1y ago

Struggling with Breathing Difficulty: Could it be VCD?

Has anyone here had VCD that has impacted their breathing? I’m still undergoing testing but will receive my final diagnosis at the end of the month. It seems likely that VCD is a culprit in my breathing difficulty and I have a history of vocal cord issues 🤦🏻‍♀️

Can you help? Connect today

avatar

PAP112

2y

Yes! I was misdiagnosed for asthma and a bunch of other lung/heart issues before we finally realized it was VCD
avatar

Salbright

2y

Yeah :( it’s really worrying me, along with the speaking difficulties. Wheezing and coughing especially at night.
avatar

Jules26

2y

I’m with PAP112, I was in and out of the hospital for years thinking it was asthma, when really it was VCD. Much less mysterious and easier to manage!
avatar

Kk21

2y

I’ve had VCD for some years now but just had a diagnosis last week! It 100% impacts my breathing on my day to day life. The only thing that helped me personally was Flonase believe it or not. It helped with the aeroallergens that would cause my issues. However, whenever I have a laughing fit, it tends to come strong unfortunately.
avatar

Salbright

2y

Ugh what did you get it from?
avatar

Aureliamae

2y

Yeah, very much so. I can’t play flute anymore which is a bummer.
avatar

keallei

2y

I was diagnosed only last year. And I think it might be a placeholder diagnosis until we find out more. It used to be exercise induced asthma but I have no trouble exhaling. It’s breathing in during exercise that is the big problem. So far I just keep taking my inhaler 30 and 15 minutes before planned exercise like a walk or hike.
avatar

Rainey

2y

I had breathing difficulty and hoarseness. Inhaler didn't relieve breathing issue. After ENT did a scope I was referred to otolaryngologist and was diagnosed with vocal cord paralysis due to having a virus in March 2020 very sick. Then ended up with bells palsy that affected my vocal cord.
avatar

Marshie

2y

There is a surgery where they put a stint in your vocal cord. My doctor was at John's Hopkins.
avatar

luminary

2y

I was diagnosed last year and mine constrict so that for periods of time I can't breathe, it gets worse when I panic so I try to remain calm, it typically makes it get better whenever that happens
avatar

luminary

2y

I should clarify this is only when it's a light episode of it.
avatar

LynnM

2y

I sent you a message, you definitely sound like me
avatar

Emmab22

2y

yup, hate it

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc