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Pearl09

Updated 1y ago

Struggling with vWd: What Are Your Experiences?

With vWd what do you struggle with?

Can you help? Connect today

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kab

2y

I have type 2n
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Pearl09

2y

I don't know my subtype but I'm 2 also. Platelet disfunction
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kab

2y

I have low factor 8 ! I honestly don’t have too many issues now that I have cycles under control
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Pearl09

2y

That's good. What helped your cycle get under control?
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Leo_Yanofsky

2y

constant nosebleeds. i get them multiple times a day, lasting for up to an hour sometimes.
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kab

2y

I use to have nosebleeds with that kind of frequency and ingot my nose cauterized and it’s helped tremendously
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Leo_Yanofsky

2y

oh my gosh that’s a thing you can just do? i’ll have to look into it!
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kab

2y

Yes!! Mine would last for hours. I did it with an ENT !!
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kab

2y

It totally changed my quality of life no joke! I am a nurse and I would get them mid shift for hours. I just couldn’t manage it anymore. I scheduled with ent and they took a look and cauterized ! I haven’t had a major one since (5+ years) I still get some bleeding with blowing too hard/ dryness but not nearly the amount
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Leo_Yanofsky

2y

how bad is the pain from the procedure?
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lonecucumber

2y

I get easily bruised, occasional nosebleeds, and stomach internal bleeding (when i was younger)

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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