we honestly haven't found a fix but we feel you 100% on this. it's like every day is a struggle and there's very little escape. sometimes dragging ourselves up and going on a walk helps a little,sometimes it doesn't. best of luck soldier.

Thanks, beeble. My pharmacy/doc forgot to refill my localized pain med, so I can’t walk without taking an opiate, but I was able to get myself to eat & take my max dose of ibuprofen. It’s helpful to know I’m not the only one. I hate feeling “lazy,” especially because I have so much to do, but I can barely stay awake 🙈

This explains how I feel every time I wake up. I end up staying up pretty late just because it’s when I feel my best. I’m not working so I can sleep in to make up for it but no matter how much I sleep I can’t wake up feeling okay. My dr says it’s because my blood pressure is so low in the morning. I think my next attempt will be drinking a liquid iv right before bed and see if it may help me when I wake up.

I don’t have POTS but lots of chronic pain. I actually just said this to someone yesterday… I felt like I had been drinking the night before as if I was hungover but I didn’t drink! For me, a good night sleep helps but also having a good night sleep multiple nights in a row. Not the perfect solution but definitely helps.

Lots of POTS patients also have chronic intermittent hypoxia, which does cause the same symptoms for me.

I have chronic pain but not POTS (as far as I know anyway) my doc was so convinced it was from sleep apnea but that was ruled out by a sleep study no answers for me yet

I have the same, doc said im depleted in electrolytes and minerals really bad. Thats what POTS is. A deep deficiency in them. About chronic pain it can be magnesium deficiency so all body hurts. But that one is tricky. When our bodies tell us something listen never igore. Coffee is not for the sick stop drinking it, it dehydrates you even more! Eat protein like beef liver and grassfed meat, before and drink minerals so they can be absorbed.

I have fibromyalgia and wake up feeling like that everyday. It's such a struggle to wake up & get going. And even most days I wake up with a headache too.

Yes! I always wondered what causes this. I don't know how to even describe what it feels like when I sit up or get out of bed in the morning. Feels like I was turned inside out and upside down. Like I just woke up from death or something lol

Yes. I wake up feeling absolutely horrendous every day. Having chronic constipation makes it worse and I wake up realizing I’ve been in pain and spasm when I sleep so you don’t know how much you actually slept. It takes a couple of hours for me to feel less like death. I talk myself off the ledge every day basically. Even if it’s not great I drink a lot of coffee so my head space will shift a little from the caffeine.

coffee actually makes it worse for me somehow, i think its the dehydration. the best thing i can recommend is staying extra hydrated (like 80 oz a day hydrated) unless you have contraindications to it, it can really really help with POTS symptoms. i still have them and still wake up fatigued most days but its better when i stay hydrated and i feel hungover when i don't (nausea, dizziness, and all)

I feel like that a lot of the time, especially after a migraine. It’s extra not fair because I don’t even drink. My doctor told me to stop drinking caffeine because he thinks that I’m not getting enough good quality sleep, and caffeine takes 14 hours to completely cycle out of your body. I haven’t had any caffeine in a month and a half. Do I feel any better? Not really, but this is what he said to do so I’m trying to stick to it. If it didn’t help me maybe it’ll help someone else.

Yes. Same.

I feel this way constantly. It's worse on the nights that I get more sleep than usual, especially if it's deep sleep. There are some days that it's extremely hard for me to stay awake, usually accompanied by headaches and blurry vision. I'm not diagnosed with POTS, but for multiple reasons, I have wondered if I have it.