What don't they get?

Torriblaidd

2y

How much it hurts and how hard I work to just exist

Zaebug

2y

same 😥

Telescopial

2y

Oof. This is it.

trocket13

2y

that part !!

IcecreamMoon

2y

same!! 😥

Bludesign4

2y

🙏

Jgar

2y

right 👍

HorrorMaster88S

2y

yess

KimmyQuakes

2y

Same🤗

D4s

2y

Life is constant process. It often feels like “too much”

honeydulce

2y

I don’t want to die, I just want to take a break from living and being exhausted 24/7

Adventuremom

2y

exactly!!

SommerSDR

2y

This is perfectly said! Sometimes I'm glad they don't know what it's like because I don't wish even a fraction of what I feel on them. Plus, I don't want to hurt or worry them by revealing how hard it truly is. You can even potentially face harsh judgement if you tell someone how hard it is because they don't fully believe..BUT then other times..I wish they could just get a small glimpse to see...so they could really understand..then they wouldn't ever question my pain or my actions...or lack thereof of actions I should say. It's a hard spot to be in. You want them to know you're strong and fighting every day to live..as it makes them feel better if they think you're ok...but..that has consequences. Like when they question why you can't do something when you just did it yesterday or something. Most of the time I try to put all my energy into taking care of my family..which leaves little energy for myself and others. You want them to understand so you have a safe space to lean..but at the same time...you would be hurting, worrying, or potentially facing judgement from some of you reveal how hard it really is. A vicious circle...and we're stuck in the middle. I wish there was a solution.

shortlife

2y

same honestly and I told my brother I loved him in public but he said all I do is embarras him and ruin his life and then he and my grandma told me if I died tomorrow that no one would feel bad, I actually considered giving up my battle

calion

2y

PREACH

Neel

2y

This feeling is more relatable than I'd like to admit. Hang in there. It's worth it.

Lunako

2y

for real!!

StrawberryMilk

2y

Yeah ❤️

Bella.ella

1y

I feel this so much and it is absolutely heart breaking. Although I’m starting to think me trying isnt good enough anymore.

Deep_Feelings

1y

Ugh, yes. This!! I feel it.

rubytuesday

1y

🙌

Allisonn

1y

Oh yes Amen!

Trulyloved

1y

I understand this so deeply that it hurts

luce__

1y

yep!!!

MerlinTheWizard

1y

Why dose it feel like I'm fighting just to prove that I'm allowed to exist sometimes.

Mizzee

1y

I can so relate to this😥

beater.queen

1y

this hit hard. You're totally right. Neurotypicals and nondisabled people do not understand how much extra work we have to put in to just staying alive let alone staying functional.

RainCloud9

1y

100%

Bre19

1y

felt this

MSRITBEUTAMSCS

2y

Elaborate

smalltownkidneys

2y

How strong I have to be. So that my husband can cope and deal with my cancer. When I feel like I can't deal or cope for myself. When I'm the one going through it and in constant pain. And constant Drs appointments

binkyyy

2y

i wish u the best 🤍

AnniB

2y

I have stage 3 ckd and I’m so worried I know it’s nothing like your worries but I feel for you hope you can clear your thoughts and enjoy your life

Knotless1133

2y

if you ever need someone to talk to I’m here 💞💞. You don’t have to do this alone

Telescopial

2y

I’m so sorry and i’m sorry you’re forced to be strong on top of that. You deserve to focus on living right now and it’s unfair that you don’t get to do that. I know it’s not much, but i’m rooting for you so hard from my corner of the world, friend.

frausto86

2y

❤️ sorry to hear how difficult it is for you yourself to grieve your own illness but being considerate of your loved ones at the same time

Sugoober

2y

I feel this in my soul. Battling brain cancer with 4 kids, a career and being a wife. It’s exhausting. And no one seems to get it because I look ok and push myself beyond my limits because if I don’t nothing gets done.

Bre19

1y

felt this

T_Bone

2y

Misophonia

BAKER

2y

The fact that taking medication- of any kind- longterm is not easy. Needing medicine can feel like a burden. There is a huge mental barrier that you have to get past in order to be able to take medicine everyday without resenting your body for needing it.

srea

2y

YES I have this fear of medications that has made me procrastinate accepting them… when I first had just two pills a day it made me feel old and I was 18… Some nights I fall asleep staring at the pills putting off taking them 🫣

Aperellime

2y

❤️ there r alot of times that I don't take my meds bc it's so depressing

Bre19

1y

yes

Citla

2y

PCOS is not something to wish for just because I miss a couple of months from having a period. PCOS affects my overall health. I am not “lucky”.

kikihpfan

2y

this is so true

Lavs

2y

😠 you are so right

Viynyl

2y

Not being able to do their day to day without being in constant discomfort weather it be caused by internal or external situations. Some people in the world act as if dissability is some sort of "privilage" or "excuse" and that really bothers me because people take their good health for granted more often than not. I'd happily take what is concidered a minor inconvenience over constant pain/discomfort any day if I had the choice. I'm always jelouse of people who are able boddied/NT. They will never understand that ammount of envey.

darkstarrynight

1y

I get jealous of people that don't have my invisible illness (chronic pain) that I do 24/7. People that can run, and exercise and aren't limited by their bodies. I am so jealous of them sometimes.

BellzH

2y

I see when my friends/family/relationships get tired of having to take me to the ER or that I have a ton of doctors appointments. It makes me feel even worse than I already do.

faerywyrm

2y

Most people can't understand. That doesn't mean that we're abnormal, unlucky, or crazy. It's their problem. They are either narrow minded or clueless. Usually it's clueless. Remember that they are the ones with the shortcoming.

Bre19

1y

yes

Nonamae

2y

How much pain I’m in and how exhausting it is just to do normal everyday stuff. I’m not faking being sick. I’m faking being well. And it’s getting harder to do.

Innerwork

2y

Yes..faking every moment is exhausting in itself. I am sorry to all as I too understand how difficult comprehensive health problems are.

Bre19

1y

yes

amedhat

2y

That it’s not all in my head.

Bre19

1y

so true

Ink789

2y

how much i put an effort into socializing and daily chores

Bre19

1y

felt this

YourDailyFurry

2y

Everything. That I need a therapist, assessment, mental help, possible suicide help, everything

Foof

2y

That trying to fit into an able body world os not something I can do.

DeafBatman

2y

I hate that my parents don’t understand mental health problems when they clearly have some themselves. They don’t get that I’ve been given everything they have to deal with and more. They think I’ve done well in the past coping with everything but the fact is that I’ve always felt like this, I’ve just been better at hiding how hard it is so that they don’t have to be in pain for me. So now that I am lacking the will to hide it they think I just need to get up and do more in order to “feel normal” again. Unfortunately I don’t think there’s such thing as normal. Maybe we weren’t meant to be normal. But then how do we live?

HanStruggles

1y

I can relate 100%, I lost my mother to cancer when I was 12 turning 13 and my dad was physically and verbally abusive even when she was alive. Living with him without her as my protector was the worst part of my life so far.... Luckily I have moved out of his house but I still don't think he knows how much he has damaged me. When my mum died I felt like I had to be the strong one and comfort him even though I was still pretty afraid of him. Our relationship now is still very confusing but better. I understand that he is just a person and he isn't perfect but I could never imagine treating my child like he has treated me... (I don't have children yet but I'm planning on having some in the future :))

kandi63

2y

😥

Wesj75

2y

What I have to go through mentally to handle a day

shinchan

2y

how hard it is to keep a smile on my face and make everyone laugh when all I want to do is lay in bed forever and disappear for who knows how long

Songbird24

2y

I really really deeply felt this… god, this is me on the daily… you’re not alone, I’m here with you in this exhausting, endlessly depressing boat

Ojos

2y

Is so dificult to deal with pain and stilll go to work and deal with co workers and lisent to the stupet coment and have no hard filings for oders god help me

RavenJord

2y

Dealing with daily pain, muscle spasms, numbness, tingling, etc, stuff that would make others not even be able to move. But dealing with it without medication and not letting on that I'm even in pain.

ErickDaniel

2y

Hi

Liminal

2y

How the things they say hurt me

MatchaBunn

2y

That I’m trying my hardest with the tools that I have, but I need more support and tailored care.

Alecia23

2y

When I look at my phone it’s not being rude I am escaping a situation the way I know how too

katmweaver

2y

How hard it is for me to be understanding when no one tries to understand me

ChokoBunny

2y

That my panic attacks and anxious intrusive thoughts aren’t a choice

kingseijuro

2y

even my eyelids hurt.

MeeB333

2y

- I have had a few different doctors laugh/scoff at me when I was asked “Where are you in pain?” & I answered that it’s literally everywhere, & that “It would be easier to tell you where I’m NOT in pain,” but then I couldn’t identify anywhere! Ummm, so I guess my hair & fingernails don’t hurt…?!? Ugh!! So frustrating. 😑

Yarden

2y

How jealous I am of healthy people 😥

Alex_Rose

2y

How hard it is to get through the day pretending to be normal.

Alex_Rose

2y

How much I try

LoverHeart

2y

That I'm trying as much as I can and even when I say I'm fine I'm not really fine right now. I'm trying my hardest but whenever I try and talk to someone it's almost as if they are trying to compare theirs to mine and they have to have it worse. I don't even think my stepmom or dad have even realized I haven't eaten since Monday..

hurt_copain

2y

Lights r loud

Sincerely

2y

and high-pitched.

Nat_Roze

2y

How hard it is to make myself breath again everyday

Magpie42

2y

How I can be "normal" or "productive" one day, or for a week, and then bedridden the next. That I don't have a choice in how my body feels any given day. That I don't want to have enough co-morbities stemming from a/a few genes that went wrong to take down someone less determined. That I didn't ask for any of this.

JoshAG

2y

That the things that make me “weird” are just a product of my disorders

Jewels18

2y

How bad all of it has contributed to my PTSD

Madpanther

1y

Same herd 😥💕

bluecashew97

2y

How politics is a sham show and were worse off than medieval Peasants

Boo2004

2y

How hard it is to get out of bed and find the energy to keep fighting because sometimes all hope seems lost.

Mafuyu

2y

That I want to live alone but actually hate being alone. :,D I want to have a huge house to myself and be on my own with independence, but I hate being alone or doing anything alone. It’s a super weird feeling, it’s hard to really put into words.

Memaa

2y

I am so afraid to be alone. Funny, because in the past I have lived alone for years without problems…..

Alexquinn

2y

That I've been through crap that they might never go through

Wheezerr

2y

Its hard for me to process things sometimes. I feel a wall between me and the physical world at times. Its like someone throwing a ball at you and you catch it for a second but it slips out of your hand and bounces further away

kk062001

2y

i’m appearing happy, but truthfully, my brain is telling me i’m not worth sh** every second of the day. that i’m fake. that i’m not really who I say I am. that this front is what makes people walk away. that everything is wrong w me. i’m drowning, but sure, i’ll give you a boost out the water.

Songbird24

2y

Wow, I deeply related to this… I’m so so sorry you’re in this much pain, and I’m sorry you have to go through this because I wouldn’t wish this pain on anyone… I want you to know you aren’t alone, I’m right there with you

IsabellaJ

2y

That were not looking for attention, seeing isn't always believing and I don't have to prove anything to you for you to be able to believe me

Vannah349

2y

How my pain is CONSTANT. I’m always hurting to some extent.

PlaslyMeds

2y

How tired I am of being alive. To the point where I feel like my good days are a lie and I simply do not want to do this anymore 95% of the time, but I act like I do so they don’t have to feel bad

Fairwind

2y

That we don’t want to be like this.

Modragon

2y

That dropping the friendship hurts a lot

Songbird24

2y

Felt…

AuntBeeDoesGames

2y

How hurtful it is when the doctors tell me that my condition doesn't usually cause the level of pain I describe I'm in and that they see no reason I should be in a wheelchair. That fibromyalgia amplifies my pain levels and is the only reason I think I'm in as much pain as I say I'm in. Thank goodness my pain isn't supposed to be as high as it feels, I was starting to think maybe just maybe an MRI with contrast shot into my hip joint would reveal enough evidence as to why I'm in this much pain but I guess not...second opinion here I come, third opinion...hmm who knows 9th opinion maybe it will take to convince these power tripping doctors that get it finally that maybe she is actually in this much pain for an actual reason and is not an addict so not a drug and alcohol problem no it's a PAIN problem! My saying I want to die etc is because of the pain and you putting me in the psych unit where they cannot treat said pain of course I'm never getting out of there because my pain levels are so far past capable tolerance it's unreal. I don't want to die...but I also don't want to be in pain...and since y'all think I'm an addict...what other options do I have out here? Pot works wonders if the right strand is obtained...sorry not sorry. Over a month to get out of my system and y'all want me off, ok so 12 hrs after quitting I'm ready to die cuz it's just THAT uncomfortable level of pain...so I guess I'm stuck. Guess I leave my family and move states maybe the doctors there will look past my only vise and help me

darkstarrynight

1y

hey I don't have much advice, (I have chronic pain, but not fibromylgia), but I do know Lady Gaga has fibromylgia. Try to look into what she does to help with her pain, and see if it provides any relief.

AuntBeeDoesGames

2y

They don't get that we didn't decide one day to try out our mental disorders from a menu on a board and keep them. Just choose happiness? Why on earth didn't I think of that?! I choose to be defeated by major depression with psychosis, anxiety/panic disorder, PTSD, ADHD, borderline personality disorder with fibromyalgia as the cherry on top 🍒 I choose not to do anything it's not lack of motivation at all, no, I'm lazy yep.

Cocosir

2y

Sensory overload

Bre19

1y

yes, so true

rorose

2y

how hopeless it sounds when they tell me i cant heal from my disorder. i refuse to believe that. i believe i can find the path to the life that heals me and improves my health. i dont want to believe that i cannot get better. i wont.

darkstarrynight

1y

same

Bre19

1y

same

IAmZeMedic

2y

How hard it is to not go to my mom with my racing heart. To try and not to tell her "I have to go to he hospital tonight. I feel like I'm dying".

srea

2y

panic attacks?

srea

2y

That my pain is not “normal” That I have value which is not attached to my ability to do things That I’ve ALWAYS shown the executive dysfunction of someone who’s “getting old” That my immense talent does not correlate to the ability to keep a job 🫠

Leviross

2y

I have reasons not just excuses.

Bre19

1y

so true it is so unfortunate

ricecake

2y

how hard I’m trying

Bre19

1y

felt this

keekso234

2y

How I want to go off my meds and be happy about it.

mobychick

2y

How to love unconditionally

Bre19

1y

same

blood_rose

2y

How hard I have to fight my own brane and body to do anything and how tring emotional and physical it is

Iron

2y

That my base level is not the same as theirs and I already push through almost everything

dih

2y

🙏

brutal_brown

2y

That there is an answer it's just there's lots of people who have made the Answer look horrible when in reality the Answer is amazing, my life is proof of it. There is a light at the end of the tunnel and it's not will I make it it's when.

musiclover98

2y

Having to come to the realization I will never be able to be independent. I will always have to rely on someone to help me and help take care of me. PCOS has been such a burden. People don't understand wanting so badly to work a full time job and have an income for myself and when I can't, how much that takes away from who I think I should be. It affects myself image WAY more than my weight or anything else honestly. I've kind of put my identity in being able to be MYSELF (being totally independent) and I just feel at a loss. People don't understand the want to be able to just get out of bed in the morning without feeling like you've been on a 6 month binger.. the pain is real and all I want is for it to go away!

blue_boy03

2y

How difficult it is when a Dr doesn't take you seriously. Like I've been having heart problems for months and it got so bad today i had to go to the er i was sent by my Dr and when i got there they just gave me anxiety meds and refused to do the blood work my Dr requested because it needs done.

Mazzyllene

2y

What I mean when I say I'm tired.

Lydia8271

2y

I cant be better

Strawberryhk

2y

I’m going through addiction

Strawberryhk

2y

I want hello for my illness but we probably don’t have money to cover the surgery and I’m way too nervous to go to the doctor. It’s gettting totes idk what to do I’ve been dealing with this for years and it’s ruining my life

mnmerritt02

2y

The fact that I've had many life and death situations during the times I had four heart surgeries as a kid. I basically went through hell and back.

laceyandme

2y

How hard it is to fight voices in your head

PriscillaAdams

2y

I feel like people don't really understand how much pain I'm in, and my house is suffering, but no one wants to help me.

str8outtacollagen

2y

Missing important events isn’t something I want to do - I would be there if I could.

HoosierMama92

2y

How hard it is to get out of bed some days... My pain is constant, so it's a struggle.

Morticia013

2y

That my kidney disease and dialysis aren't just a vacation and me being lazy.

dayzed

2y

That some people just *CAN'T* do things like everyone else. Albeit mental or physical, either just at that point in their lives or always. Just because you can do something or know someone who eventually could, don't press that on everyone you meet. Support and encourage but don't pressure and force.

Octavius

2y

That it's not about "eating less"

ChloeMae

2y

How energy consuming being depressed and having social anxiety/anxiety is but also being high functioning with it. Like people don’t understand that everytime I leave my house I have to put on a happy persona how much energy that takes from you. Like I’m working two jobs and in grad school full time, I did this last semester and was burnt out by the end of the semester to the extent I literally couldn’t do anything by the time I was done. I took a month off from work and it took around 3 more months to heal from that. Now I’m only 3 weeks into this school semester and working two jobs and I already feel myself burning out. & my dad just thinks I’m just being lazy by wanting to quit my job and focus on school. and I understand why they see it that way because it’s so hard to even understand myself why it happens. Like I need time, EVEN A DAY, to breathe because it is so overwhelming.

TrebleNurturer

2y

That my bad moods are almost always due to my health symptoms 😥

BritBrat92

2y

How everyday is a struggle

CookieRae

2y

That Hypermobility has been with me the whole time, and that i won't be fine

imbatman

2y

Life shouldn’t be as hard as it is.

PeppermintAnn

2y

that some days, i am one motion away from giving up. that the past looks so inviting. that i don't try to upset you, i actually try to do the opposite.

lokk

2y

👍

kelianne

2y

They dont get that what they do effects me in so many ways. They're causing so much pain unintentionally but they dont understand why i care

Redvelninja

2y

Why I get mad when all I ask out of others is to be in the know about things.

thatweirdspice

2y

That I'm not lazy, but just trying to survive takes so much energy that it's nearly impossible to do daily tasks like clean and cook.

Mika15

2y

That I can't explain what's wrong because even I don't know what's wrong. Just that something is wrong.

archerinnit

2y

That im sorry and im changing

Phoenix.Afrodita

2y

That Impact is bigger than Intention, and matters more.

EliteLexy

2y

How much their words hurt and just how much I love all of them.

Squishlover

2y

that I'm exhausted no matter what and it's a struggle to just wake up and sit

pandasss

2y

That even though I can have good days doesn't mean it's always good or that I actually experienced trauma and that I'm not just "making it up" or "it's not that bad"

rorose

2y

how quick and how much my feelings change. how i need to change with my feelings. i cant always be flexible and i try to be but sometimes i feel like they move abnormally slow and linger at places just for no reason but to feel like they spent enough time somewhere to make their trip worth it

Kade229

2y

Everything, I don't want to do anything ever and it's really hard for me to actually do things and if I don't do it to their 'standards' then I get yelled at so

VioletRaine

2y

That I'm not being rude when I don't respond but my brain is running through every possible outcome of how I word what I say and if it will come out offensive or hurtful or selfish and I'm trying to get it right... And by the time I do the conversation had moved on.

Mellow_love

2y

The fact that I cannot control or even comprehend my emotions. Everything is such extremes all the times for the smallest of reasons. I do not want to be an angry person but I cannot help it because everything is so overwhelming that it's the only way it comes out.

prettypixie

2y

Im too self aware for counseling to help me. It always ends up the same, all they do is just agree with me but it still doesnt fix the problem. Like i know what and how but i just cant fix it its so hard to explain

MeeB333

2y

- I’ve literally had over a dozen different doctors, therapists, psychiatrists & other practitioners over the years tell me that I was as smart/smarter than them & that I’m the most self-aware (4 whatever condition or illness sufferer) & intelligent person that they have ever met…! And, these were just those who were willing to admit it, & didn’t allow their ego to get offended that I know so very much about my own issues!! Some docs will actually get offended, & have dismissed me as a patient!! So, I understand your problem. It sucks to be so smart that no one (is either willing to &/or) knows how to help you…! :-/

Noella

2y

How living with extreme anxiety is a constant battle. 😫

ASAP_Panic

2y

That I can’t please him how he wants and how often he wants. It kills me inside and makes me feel broken. Chromic pain is one of the invisible illnesses that people don’t talk about enough.

camel

2y

That it is hard for me to not cry after being yelled at once or multiple times. Mainly my dad.

Space_Case92

2y

That I can never forget all the hateful stuff they say to me because instead of trying to be kind and empathic, it's easier to be hateful

ATrainwreck

2y

The hallucinations and delusions. That I have no control over episodes. That it is an every second of every day thing. That I don't tell them everything because I don't want to worry them.

dizzydarling

2y

why i’m so afraid and why i let it bother and hinder me as much as it does. i don’t mean to, it feels as compulsory as breathing

Elliott_Velvett

2y

That what I'm experiencing is very real and they need to take it seriously before I die from their neglect

NiiTA

2y

I feel exactly the same 😥

Magpie42

2y

That I work 10x harder just to appear okay.

NiiTA

2y

I just can't magically get over my anxiety. If I could, don't they think I would?

Thumpz

2y

Without coffee I would just sleep the day away.

rorose

2y

its not normal to be this speechless towards them. i wish my mother wasnt so lonely so she wouldn’t project her feelings onto me. i dont like it.

healthissues

2y

That I know myself better than they do

ShadowheartMC

2y

That I’m not trying to be lazy. Activity is just such a mountain climb for me 😔

living411

2y

They don't get how much of a battle I have to face every day. That I have to make a conscious decision to continue to work on myself despite how much I want to lay in bed and fade away.

blokeo

2y

how difficult it is to function with anxiety: my head starts pounding, i cant think, my entire body goes numb, my chest and heart start hurting immensely. It wont be fixed by telling me to “calm down”

EliteLexy

2y

How much I don't want to be here because of the pain

Ellie11

2y

That you’re not a friend if you’re only there for the good days.

mik.chick

2y

How hard I’m trying even when it looks like I’m giving in

Bre19

2y

Why I ever feel so low like especially when I was in a very dark place

AlucardHellsing

2y

How much it hurts to try so hard to motivate yourself and improve although you are more than capable and have done it before but your subconscious prevents you from doing so due to fear of being judged abd being told you did nothing when in reality you did grow but others don't care or don't see it or they do but they put you down anyways

Soskae

2y

Adhd makes me do things I don’t want to do. Not only do I not have total control over my thoughts but I don’t have total control over my actions.

ZappyRacc

2y

That I don't just hate working. That I'm not just lazy and not trying hard enough. That the reason I'm not throwing applications everywhere is because I could generate good work for maybe a week before a symptom flare sent me to the hospital and lost me the job, and I can't handle that happening AGAIN.

Gaz

2y

CW: weight loss/dieting mention What my parents don't get is that YES, my disorder CAN go away with weight loss but weight loss is INSANELY HARD and we are faced with LATE STAGE CAPITALISM and DOOM and I'd rather die having eaten sugary things than been a doggone ascetic my whole life for a SHOT at getting rid of my IIH

Ms.Ruckman32

2y

How much physical pain is causing me to become severely depressed and hopeless. It's the your lazy or you know u can do this to lose weight...it makes me cringe and wince.

CinderLorel

2y

I wake up every day wishing I didn’t. My first thought is a flash of emotions that I even opened my eyes. I go to sleep hoping I won’t. I don’t actively try to die but I’m sad everytime I realize I’m still here. It takes so much just to fake being a person let alone appear normal and functioning.

Ella101

2y

I feel that too

shimshim

2y

Everyday isn't the same Just because a healthy person can get their to do list done everyday dosnt mean a person in pain with daily body issues can follow suit It's literally exhausting

cbear22

2y

My mental health problems

a45_evan

2y

That anxiety is a natural disorder and that’s it’s okay to have

Raquel226

2y

It's so true, it's hard to just exist for a lot of us. My boyfriend is very generous, and he makes plans for us every weekend. We're either going to a concert, a comedy show, a play, or another form of entertainment 2-4 times a weekend. I'm very lucky and I'm not complaining, but sometimes it's hard to physically keep up. And since event tickets are non-refundable I feel compelled to go and pay later (physically).

Phoinyxisnotonfire

2y

How hard I try to fit in only to fail miserably

MareBare

2y

How much harder it is to do things other people do with ease

Wednesday_7

2y

Not all disabilities are the same. Even the same disabilities present differently in everyone.

Kaitikins

2y

How EXHAUSTING it is.

EternalEyes

2y

How much pain I'm in... On the outside they see the smiles but the inside they can't see the catastrophes. On the outside I look all right on the inside I'm feeling drained exhausted

SA65

2y

The pain

XJ

2y

I understand that what I’m thinking isn’t real or actually happening, but it feels real and I’m going to react to it as though it is real on the small chance that it might be.

NiiTA

2y

I just can't stop being anxious 😥

canadaisntreal

2y

how hard i work to exist. how my brain works. how drastically my mood can switch within a minute. me, i guess.

Sincerely

2y

I wish people understood that they're not perfect either. That quite possibly their problem in which we can't see, might just be worse than the problems of someone whose you can.

hydroepilepic21

2y

How hard it is for me to talk to people or express my emotions.

SymptomOfNostalgia02

2y

The fact that I never have the energy or the motivation to do anything. I just do it because I feel obligated to.

CatCollector

2y

The effort to leave my bed, the effort to do simple everyday things, the effort to be present with others, it's just completely exhausting and gets harder everyday.

JJ_W

2y

My illness isn't something I use for my convenience/as an excuse. It's real life.

DarkWhispers07

1y

I absolutely hate those people who don't believe mental illnesses exist. Especially when they ridicule you for "how you should be more productive" and "your just using it as an excuse to be lazy all the time

WilburEffingSoot

2y

How hard it is for me to "get over it" or "ask for help". Or, better yet, when they tell me that "Oh I don't see what the problem is" I'm trying, I swear, but- I can't do this everyday-

GhostieShark

2y

How exhausting it is to be a human… I have to be okay and act like I’m okay when really all I want to do is scream and hide away. It’s so tiring to keep it together.

Ella101

2y

felt this 100%

pink_milk

2y

That I’m not actually lazy

Ella101

2y

thank you! They just don’t get it

hydroepilepic21

2y

Everything

Animalnerd

2y

How hard it is to function or even get out of bed some days

Ella101

2y

yes exactly!

KTTabbs

2y

That just because something is easy for them doesn't mean it is easy for me.

Nightreader

2y

How I don't know how to express how I feel cause I don't know most of the time 😳

Karrieanne73

2y

Exactly how it hurts all the time and what’s going on in my head but I have become such a good actor . That I don’t let many people see that part of me . I don’t let them know the constant pain I’m in or the racing thoughts in my head or the anxiety and panic in my head.

Lucaaaaaaa

2y

My pain and sadness

Lunako

2y

😢 same for me as well. So overbearing at times. I hate it.

GravesWarrior

2y

How much it affects me and how hard I’m trying to get better

agentleanbean

2y

How difficult it is to keep myself from being an angry person :/.

mermaidap

2y

why i dropped out

lowempathyhighenergy

2y

How much energy being alive takes sometimes. Im in so much pain so often it's hard

BeanBetter

2y

Poor city planning affects your health.

LaurElizabeth

2y

Everyday hurts to some extent wether it be manageable or unmanageable. The guilt that goes along with not feeling like a normal person is so deep. That you want to do so much more than you body is capable of but due to chronic Illness you can’t… the list goes on and on

Ella101

2y

I can’t just turn a switch and be healed and happy. I’m trying. I can’t just make depression and anxiety go away with the snap of my fingers.

555angel

2y

that i cant control the way my brain works. its exhausting for me too. i dont mean to be a burden, i cant help it

squibibi

2y

that intrusive thoughts arent the quirky, trivial thing that tiktok makes them seem to be

1mp

2y

That I'm just trying to talk. I'm not being rude, I just want to understand

Jazzmin87

2y

sadly I can understand this. On a good day I seem normal and perky. I like that me and wish I could be her all the time. On bad days I'm moving around like an old woman wishing for a break in pain and just trying to figure out the basics. With fall and winter weather the bad outweigh the good, joy. Which is sad but at least I know what to expect if other people don't. But I know just gotta keep chugging away like the little engine that could.

Boo2004

2y

They don't get how exhausting it is to get through the day. To fight and see barely any results. To see friends and family disappear because your to much to handle.

IceGoddess

2y

Who I am

Ziggy_B

2y

That I'm still young and figuring stuff out. Getting good grades in school doesn't guarantee my success and doesn't mean I have everything figured out. I'm just trying to enjoy my life while I can and when I can. Tommorow isn't promised and I'm taking it slow but I'm determined to have a good time.

DrakellaEuphrates

2y

That just breathing is exhausting.

StrawberryMilk

2y

I am more uncapable than I make it to be. Its a mask. It’s exhausting.

Lilginger

2y

Same here. 11 years and I can't do it anymore. Im Tired

tea444

2y

that what they're doing is not helping me it's making me worse

Kittypop

2y

I'm going to the doctor bc I don't feel normal or "ok" so testing me & telling me that everything is "fine" doesn't help. I came to the doctor for help...

Something_Strange

1y

That it's not funny to laugh at tourettes. If I'm laughing you can laugh. But if I look like I'm in pain maybe shut up.

Masscrystal

1y

That I’m not lying they are

IceGoddess

1y

My struggles

Jewelicorn

1y

How I see and understand the world. It seems like I live in a very different world than almost everyone I've ever talked to. I feel so alienated. I don't understand the world that everyone I talk to describes. And it is so freaking hard and hurts

Harley100719

1y

How certain things (words, actions) affect me and my mental and physical health

Rayningtigress

1y

That i have symptoms i don't understand.

Captain_Honey

1y

They don't understand that due to years of not being diagnosed and helped I now can't tell if I am trying my hardest or not. So now I feel like a failure unless I'm basically committing self harm by working too hard

Sapphire34

1y

How, high my anxiety gets when I'm around a bunch of people and all.I want to do is disappear

Moomoo72

1y

How tired I am all the time. That often times it really is impossible for me to do what people think I should do because I do not have enough energy.

WWJD

1y

That I'm doing everything I can. Some times a lot, sometimes a little, but its all I have.

OurLadyOfChaos

1y

How much I just want to be "normal" (functional, not in pain, mentally and emotionally stable, productive, have normal executive function, not be sick or in pain)

SunInAugust

1y

I'm not trying to be difficult, I'm having a difficult time. I wasn't able to read between the lines and took you seriously, i wasn't trying to stir up drama. I'm not being dramatic and exaggerating my experiences, i have heightened emotions. I'm not trying to be so heavy, my life has been heavy for me. I'm not trying to be annoying or disrespect boundaries when I ask for clarity when someone needs space, I just need detailed and consistent communication.

MultiMato

1y

How much it costs me just to act fine through the work day. I rarely have energy for myself afterwards.

Sweetpea94

1y

How much strength it takes to walk out and be able to do basic things.

FlyingLizards

1y

"Can't you just choose to be happy/ more productive/take care of yourself more?"

Skittles22

1y

Definitely how much pain I go through every day. I want them to understand but at the same time, I'm glad that they don't.

Nalabird

1y

How being fatigued isn't being tired, it's like you've been unplugged & you physically cannot do things. It's not a few hours missed sleep!!!

colourfulburrito

1y

They don't get that they say things that trigger me. Like "oh you're eating so and so, I thought you were trying to lose weight"

Deep_Feelings

1y

That they continue to and choose to misunderstand me. They won’t listen or they don’t care.

Coke

1y

How difficult it is to not isolate myself to make their lives easier

Locien

1y

I'm trying to do what I think is best for me.

FiberArtist

1y

What is behind my smile. I live with chronic pain and I won't let it stop me from living. But it hurts. I just get so tired of hurting.

Noah_Arrington

1y

That I really am trying but it's just difficult

Madi143

1y

My bf constantly asks me if I'm tired of being how I am and why I don't change. He doesn't understand the struggle just to function enough everyday.

indie9367

1y

That even though it's not much I give them the best I can 😥💕

Songbird24

1y

SAME

emotionallygray

1y

That sometimes I don’t have the energy to even exist.

AlikeYou33

1y

same.

Trudie_tootie

1y

That I can't just ignore my mental and physical pain and get any job. I've tried to just push through and have ended in the mental hospital and ER so many times.

RenaissanceGirl

1y

I feel that. My dad tried to tell me to “power through” a migraine and keep working. I got sick all over my computer and wound up in the ER.

RenaissanceGirl

1y

That good days are almost scarier than bad ones.

Songbird24

1y

Absolutely relate to this - at least with the bad ones there’s nowhere to fall, no shoe to drop

Lil_rain_cloud

1y

That everything is 10x harder, even if its a simple task

EDS4Life

1y

That I'm exhausted. ALL. THE. TIME.

AlikeYou33

1y

this can’t be real, right? Other people can’t feel this exhausted all the time and still do ALL THE THINGS. How are they doing it and we aren’t? I don’t know what it feels like to have energy anymore.

Songbird24

1y

That none of it is for attention, all of it is real, and when I attribute thoughts, feelings, or actions to past trauma, I’m not playing the victim, it’s just my reality

AlikeYou33

1y

I hear you. I feel that. 🙌

cheleb77

1y

That they were my whole world and how much it truly hurts me the way they're treating me now.

walkerstalker

1y

everything

MariWolf

1y

That I can't live if no one taught me how to live as an adult, just complain what is wrong with me. No one wants to be with a low vib they say.. like this they killing ppl.. They don't get how it is to be sucidal.. To be all alone ALL ur life, just being used. Trying hold on to ppl just to feel horrible pain physically and emotionally.. I could ramble forever..

Faith._Regina

1y

That I don't hate them and that I'm not mean. I just have so much bottled up feelings and go through really bad depression episodes

Tracks

1y

That I breathe, but that’s about it sometimes I feel

Faith._Regina

1y

That I don't hate them and I'm not actually a b!¡ch

Marcaroni22

1y

That I just want someone to check in on me more than once a month or to give me a good genuine reason not to go through with my plan.

EliteLexy

1y

How lonely this entire life has been.

Wednesday_7

1y

That just because I chose to use a mobility aid I didn’t choose to need it.

Country_FLMama

1y

How much I want/need support even when I push them away.

WhiteFlamingo

1y

How easily I can find myself on the edge just because of obsessive thoughts.

Moravid

1y

🙏 🙏

Songbird24

1y

How deeply and genuinely I hate myself

RosiePosie21

1y

Im allowed to feel emotions without people automatically assuming it’s my bipolar disorder acting up again. It’s like I can’t feel anything anymore without my mom automatically assuming the worst

Something_Strange

1y

That trying to find any way to diswade me from being trans is still transphobic and makes me want to jump

Amanda1993

1y

How exhausting it really is on a daily basis to deal with this crap!

Lexusherr

1y

How much hip dysplasia hurts and they don't get that I physically can't do certain thing bc of it

Teagle

1y

That is me too

KabaneDaTo

1y

That waking up in the night sometimes is just a part of my life now and doesn't need to be regulated with extra stronger drugs

Madi143

1y

Unfortunate pretty much everything

Mr._Dank

1y

How I really am alive because I don’t want to hurt anyone. I’m always very close to not being here anymore, and the hardest thing is to keep going. It’s so painful to be here. I have things that make me happy, yes, but my depression and anxiety get in the way so much. My PTSD and childhood trauma effect my life too much too. I get paralyzed by all of this and it makes me feel like a failure a lot of the time. I still work full time, but barely feel like i can get through it most of the time if I don’t have a constant distraction for my brain to shut up. I am constantly fighting with myself and my demons. It’s all just a constant war Inside of me. I have family that see me as less than because of my gender identity and sexuality.. and that just makes living even harder.

dan91

1y

How hard life is with it and how painful it is, calling me lazy

Country_FLMama

1y

That I'm not lazy... I'm not "tired" I'm emotionally, mentally, and physically exhausted from doing the things you take for granted every day.

Alexquinn

1y

How much I struggle to keep my mask so they don't freak out

Lkbmotion

1y

That sometimes I can't just push through it

AlikeYou33

1y

That their words destroy me.

italianxpeaches

1y

Just how painful it is to eat and why I only eat one meal a day. My mom finds every chance she can go criticize me, ridicule me and say how unhealthy I'am for *starving* myself. But it is an excruciating process for me to eat food and deal with the aftermath. I only want to deal with it once, not three times a day. Plus the 1 meal versus 3 has actually worked out great for me health wise in other aspects. 3 meals just aren't for everyone. Still though, she tries to force and push food on me like I can't think for myself. No I don't have an E.D. but I would if I listened to her as she'd be shoving copious amounts of food down my throat just so she didn't have to eat the over indulgence she wants to cook.

Miky

1y

That there’s actually something I’m struggling with and I’m not just making it up

MarshallTheGayest

1y

How hard it is for me to get up in the morning

StarrKeats

1y

I'm not lazy I'm exhausted and the pain scale is not accurate. my 5 could be someone's 9

BumbleBea

1y

That my fatigue is all consuming. I'm not lazy - I'm completely done in. Also that a suicidal person can still appear happy on the outside.

MalTheBabyDragon

1y

That I hate myself for not being able to do what they do all the time.

DarkWhispers07

1y

How difficult it is to be a 3 sport athlete with depression. Like, everyone thinks I'm doing ok simply because I'm fit and I smile a lot but under it all I'm just trying to be able to wake up every morning and get through the day so I can come home and sleep more

Dr.Justin.Time

1y

How much it hurts. How real this is. How unavoidable and damaging this is.

Stephanya

1y

how much of a chore it is to get out of bed every day. I'm not lazy, sometimes I just can't face it

SecondChance

1y

It's more about what I don't understand and the fact I need to be honest with myself. The truth hurts a lot and it is scary.

kindkoala

1y

That it isn't a phase

RainbowzebraJules

1y

I have an assistance dog and the amount of time and energy it takes to rely on another being. Wouldn’t have it any other way

RainbowKai

1y

That I am indeed trying as hard as I can

enjoyskyblue

1y

That I know I "could" do so much better, if I wasn't sick. But I am, and I can't *stop* being sick. It's not my fault it takes me longer to do things, I cannot help it. I wish I could.

SlothMomma94

1y

Just how much energy it takes to exist or how much it takes keep going when you've been suffering your entire life especially if you've got multiple illnesses

Moonlight.Moth

1y

I'm not being lazy, I'm just tired and in pain

pinky3

1y

How this anxiety actually makes me feel, what the symptoms actually feel like. The struggle of dealing with it and trying not to give up.

Estarfyre

1y

That I get told I couldn't have gone through or can't be going through everything I've told them or that they see. I can't just be normal, my chronic pain, migraines and mental issues and past abuse make it so difficult.

Frances92

1y

When I turn down invites to hang out with coworkers. It's not personal! I genuinely have trouble socializing, and it's a boundary to not hang out with coworkers outside of the office. I already spend 40hrs a week with them!

Xinderella

1y

How much they hurt me

ringostarr

1y

how I don’t want to get better, I just want to rest. “it gets better” means nothing

Shoyo1hinata

1y

Everything that is important and how horribly they treat people.

YGKIMO

1y

That sleep is like liquid gold

bellacourse

1y

That ignoring me is super destructive to my mental health

purplecow

1y

I'm not "just lazy"

Gaz

1y

that DIETING IS AGONY AND I KNOW WHY YOURE REALLY TELLING ME TO DIET MOM

AVW

1y

That even something as little as just existing is completely and utterly exhausting.

Soskae

1y

How much of a toll feeling like a burden can take on your mental and physical health.

Joany

1y

I can't force myself to do the seemingly "normal physical activities" everyone else can, because it can put my health at a high risk.

AutisticMama

1y

My head is constantly on overload. There's a million thoughts going at once and it makes everything else really overwhelming.

Seae

1y

They’ve been living, I’ve been surviving.

Denotchka

1y

That I need to discuss this situation and not feel like I am driving people nuts.

sarcasmic1der

1y

That good days don't necessarily mean a pain free day... or an issue free day.

darklover

1y

That I am not overdramatic or lazy or a weirdo I am just a little depressed

sorenachy

1y

That age has absolutely nothing to do with how you feel inside.

FS_cookielove

1y

Why she's hurtful and then neglectful to situations she's caused

Kupkake96

1y

How confused and alone I feel…

Ryou

1y

How we fight our own body and mind every day.

cartoonbean

1y

That the physical pain is debilitating but some days I struggle more with my mental pain than physical.

lune_mermxid

1y

Just because I'm aware of the symptoms, doesn't mean I can suddenly 'turn it off.'

hydroepilepic21

1y

I'm an adult and sometimes I would like to make a decision for myself.

KatGPT

1y

I feel like people around me don’t get me. I’ve lived without them for 21 years, and I feel like absolutely no one gets me. I find it extremely difficult to find a friend that completely understands the situations that I go through. Once I find that friend, I would eventually want it to turn into a relationship, if that ever happens.

Vivelerock88

1y

How much time energy and money is spent on things to deal with our conditions like medical bills prescriptions navigating the healthcare system scheduling appointments seeking out pain relief etc. I could probably buy a house if I didn’t have so many medical bills

Meeeeeeeeeeeeeee

1y

nothing has made me value the NHS as much as this comment.

BuddyandSimba

1y

Same

Feral

1y

That im anxious to eat and leave my house and that i cant just power through it sometimes. Arfid and agarophobia seriously harm my everyday life. I cant even go to school anymore without panicking and im told to suck it up. And that im being overdramatic. I need to calm the fuck down..

Gaia_karma

1y

I feel this so hard

unicorn

1y

That I’m not just lazy or trying to “work the system” and how much depression and anxiety affect my ability to function. Also that small things can trigger me and I’m not just overreacting and it’s not something I can control yet.

drinkingsomewater

1y

That healing takes a really long time and deep wounds leave really bad scars - metaphor for PTSD.

Kozlov

1y

What it feels like to me, or how I feel about things

betsybetsybetsy2021

1y

Living as they do dors NOT cure my depression or ease it in any way. The only way to happiness is to have a safe place to authentically be myself. I don't need to show all of me to everyone but home HAS to be a safe place to be myself. I can coexist with almost anyone who isn't telling me to me different but I really need friends. Isolating me puts this shy extrovert into a deficiency state that is literally painful and causes me to br reactive, desperately trying to find a group of people to chill with. Brooklyn can confirm that I am not noise sensitive.

moonlit_shiv

1y

It’s not nice to deny or invalidate someone when they express they are struggling.

J.ess

1y

It's not a choice

florals.and.fatigue

1y

How much time outside of uni I spend in bed

FreyaB

1y

How if a "normal" person had my symptoms for a week, they'd probably do the bare minimum and rest, yet because I have them all the time for the rest of my life, I have to act like normal and as if nothing's wrong. I find this so unfair.

Meeeeeeeeeeeeeee

1y

How much I struggle to do what they do as a norm, and how much I miss the connection to the Otherworlds which I have never got with the conventional realities.

kirstyelly

1y

How hard it is for me to do chores or remember important things

MangoNari

1y

That sometimes, I don't know why I am upset.

MerlinTheWizard

1y

Alot of people don't get why I'm upset

Igglepiggle

1y

They don’t understand what it’s like living with an autoimmune disease at all they don’t get it when I say I’m fatigued they can’t understand and they never will unless they go through it too

MerlinTheWizard

1y

I was once called "the queen of sheba" by my mom when I was fatigued during a flare up.

Atheris

1y

Preach! Like, why can't I just be tired? Why do I have to defend being tired, and not wanting to go out? Or the, "you're still sleeping!?" I get it! You're the extrovert, but dumping on me isn't going to suddenly make me a peppy flower.

CrazyMeerkat

1y

How tired I feel

FTW

1y

How I long to stop existing.

TattsCatsNaps

1y

They don’t get that that I’m exhausted most of the time. Don’t moan at me for drinking a monster - it’s that or I’m falling asleep before the day ends.

DogWhisperer

1y

The fact that some of us have a higher pain tolerance than others. And regular Tylenol isn't gonna cut it Linda.(Not an actual person)Give me a break.

Art_therapy

1y

That im not any less of a person because im sick or in pain all the time

Zebragirl

1y

How hard it is. How it's really so hard to handle. It changed my life. They can forget about my problems but I can't

Zebragirl

1y

That the school nurse is not gonna be able to help me. I can help her better than she can help me

ricecake

1y

I can’t just “get up and do it” with my adhd. I simply can’t. I just cannot.

MissSim

1y

They don't get I'm delusional and have problems with awareness and reading people

CrystalWiccan

1y

They dont get how hard I try to just exist and live.

shoe

1y

How strong and independent I am

Bakon

1y

That just because I'm young and look healthy dosn't mean I am.

Annabeaverhousin

1y

What we don’t get is us female who struggle with severe chronic pain illness that us females who deal with endrometriosis it very painful some days we don’t know how to deal with pain.

kingseijuro

1y

an 8-5 is easy for them but impossible for me...I never feel completely "normal", and never will. good health days are slowly getting stretched farther apart. you will never know true hopelessness until you realize your progressive disease, that stayed relatively consistent, is getting worse. knowing you will never feel again what it felt to be "normal", to not feel every muscle and bone in your body.

sapphic

1y

That looking past my weight, my symptoms are valid!

Feral

1y

I want to be happy too. I want to see my friends and be social again like my old self. I dont want to be isolated and alone. But it feels impossible to be okay when things have gone wrong before.

Estarfyre

1y

That I may not look like I have multiple diagnoses, or physical issues, I still need my service dog and my wheelchair.

ViikMal

1y

How intersectional all issues are, especially those that exist comorbid in one single body.

katitomato

1y

A lot of people saying how hard it is, and I’m totally with you - people don’t realize that it’s super hard to deal with chronic conditions. But one thing I haven’t seen mentioned is that it’s okay if I take my meds for the rest of my life. I already have to take insulin for the rest of my life, so why would it be a problem with other medications? I’d rather take medication for the rest of my life and be able to function and feel stable and satisfied, than to not take the meds and fall into executive dysfunction, mania/depression, constant physical pain and fatigue, disorganization, and many more symptoms. I have many people in my life who look at me like I’m crazy when I say I might be on all of these meds forever, or worse they tell me that I can “overcome” the need for these meds. Like no, it’s possible I won’t, and I don’t see it as something to overcome in the first place.

moingus

1y

They dont get that im not lying when i say im physically hurting and they make me go somewhere anyways.

dusker_star

1y

Why I'm so tired all the time as well as sick and having headaches but tbh I don't really know as well

Toxic_Gothic

1y

Why I don't always want to socialize and sit around people. I try to tell them I have a social battery but they don't seem to care at all.

BbyBunnny

1y

How much pain I'm actually in, and how sick I actually feel

JessyP

1y

How on many nights I feel like I am fighting to survive

pherosiah

1y

how lonely I really am

bestaunty

1y

❤️❤️

anotherlostsoul

1y

That i dont like being this way

poodlelover28

1y

Just how crippling bpd can be and that every day is a fight to stay alive

PrincessKiika

1y

How my mind works differently

Mariex

1y

That self harm is not a suicide attempt. I do it to stay alive not to kill myself. And that not working doesn't mean I am lazy. It takes as much for me to get out of bed somedays as it does for them to do a full day at the office. Also that I am not deliberately argumentative or nasty or judgemental. I misread people and situations. I am trying so hard to even be here that sometimes I miss things. Don't give up on me.

Hatchytt

1y

That it's not only constant, it's forever.

Grammy6

1y

What it's like to not feel good every.single.day.

MsTori

1y

That if I look like I'm in pain it's really bad. That putting on a brave face and going to work is exhausting and that sometimes basic tasks feel insurmountable by the end of the day.

wagondepot

1y

Tolerating / maintaining symptoms well doesn't mean we don't actually suffer

HiddenClover47

1y

How hard it is to get through each day

sorenachy

1y

That age doesn't matter when it comes to illnesses or disabilities.

ApricotJam

1y

It's unfair to hold me to their standards and it hurts

BbyBunnny

1y

That I actually can't walk well, and am slowly losing my ability to walk because of my hip and the pain it causes me

Junky

1y

How hard it is to just stay alive. Not a lot of people know about my problems, I'm not very open, but jesus christ it sucks. None of my friends will ever understand what its like to feel bad every single day and none of my friends understand what its like to be autistic

Feral

1y

I want to be happy to but sometimes it feels better to be sad and hidden rather than out and about being proactive and productive

MidlightTheNightFury

1y

The fact I have an Emotional Support wolf full breed wolf as an Emotional Support animal and nobody seems to care that she is there for me not there satisfaction they all think wolves make terrible because there not friendly but yet that makes them the best does anyone understand that I posted something like that on my account but as usual I was ignored

Something_Strange

1y

How much I've tried to stay palatable to their close minded views.. but it's not possible because I am who I am .. Ive tried to be straight I've tried to be cis and literally couldn't

charliebitte

1y

how hard it is

Kadair

1y

The pain of everything! No matter what, there is always pain! I am so exhausted from it all!

ginanic1221

1y

i try so hard to live a normal life but i never fit in anywhere. i’m too sick that “normal” people get tired of it or don’t think it’s that serious and just see my accommodations as perks. and i’m not sick enough + it’s not a visible illness so i don’t really feel disabled either

ginanic1221

1y

it’s just so hard to be alive and i feel like it’s extremely difficult to relate to people or even myself. i’m just stuck somewhere in the middle all the time. like this awful purgatory of life

Kaislyn

1y

How hard it is to do normal daily things and how hard it is to go to work through the pain and symptoms.

bupz

1y

How mental health and autism affects physical well-being and pain levels.

friendlybear

1y

just because i am not visibly hurting does not mean i'm not. also it being psychosomatic does not discount its validity?!

K0da

1y

They don't get how much effort I put in and I think so much more ahead, but never truly listens!!

stinky238

1y

The effort that it takes to just get through the day and I look fine but I'm barely keeping my head above the water, I am always exhausted but making sure I have what makes it worth it closest to me and those who don't care to understand can go 💕

ThunderBeetle

1y

Everything

thathippiechick

1y

That there are some things that I can't just turn off in my head. And that it isn't them, that it's me.

CrazyCatLady019

1y

The sadness that comes with not being able to walk without a cane at a young age :(

Ireine

1y

How misogynistic the healthcare system is. "Oh you can't have this medication as it's harmful to this hypothetical baby even though *you* as a real person is in so much pain. Go on birth control which causes other issues, is painful as we don't offer local anesthesia for IUDS but we do for vasectomies, or you can't be on birth control because of other medication you are on/health conditions you have. Oh you want to abstain from sex? Nah sorry even though that's 100% foolproof you are a young women so obviously you're promiscuous and want sex so you *have* to be on birth control as well as use condoms for this pain medication." ~CYCLE REPEATS~

Fukdisthikin

1y

How hard we work to change and become better... while having relapses in the midst of it all. It's not easy, we fight every day.

Endo_Warrior

1y

The struggle. The fatigue. The pain. The way I feel when I can't complete basic tasks by myself.

Kehena

1y

My family doesn’t get it because they see me Lucky normal. They can’t see what’s going on inside so they have no clue plus they don’t talk to me so they don’t know what I’ve been through or should I say I don’t talk to them because they don’t have any compassion.

zozo131

1y

The fact that it upsets me just as much as it upsets them that I can’t meet them everyday at the drop of a hat 🙃

RissTheTiger

1y

That I want to do what they can do (and sometimes could but shouldn't)

Scrungle

1y

That even though I'm not achieving as much as fast as most others, I'm still trying and doing the best I can. I'm not slacking off or "using it as an excuse." Mental illness is real and debilitating.

Zera

1y

People don't tend to get, and can even dislike me for not being as "able" as them. I have the same amount of ability, it just looks different if you can even see it! As much as that can shove their emotions down to complete a task, I have to do even more work to face those emotions while trying to complete that same task. It's unavoidable for me, but not for them. Honestly, they would only ever get it if they went through a similar level of trauma that forced them to be as aware and intentional about the smallest things as I am. Then they'll understand what a "different" brain is like to live with, all the bells an whistles included. What I don't get is how people can choose to stay ignorant of so many things outside and inside themselves... 🙄

KatGPT

1y

Understanding of autism and how to approach it

RiverBunniee

1y

Never NOT in pain. And when I say I can't do something, it means I literally cannot; not just choosing not to.

Aliek

1y

Why I am always sad. Why and how the drug I do is the only thing that provides me any relief.

Aliek

1y

How hard it is for me to even get out of bed every day.

Juliane

1y

The struggles to balance my physical health, mental health, and emotional being, while having to study full-time and living by myself at a country away from home

Jolenee

1y

Why I do things the way I do them and why I do them that way

Kaori

1y

So many people don’t get how I can be fine one minute then severely fatigued and dizzy the next

SilverLady

1y

That sometimes just existing is all I can do.

Katharina

1y

That I feel bad all the time even when it looks like I’m doing well

Qwertie

1y

That they haven't helped me find out what is actually causing my problems. All of that work I had to do on my own.

kariTee

1y

I don't want to be an inconvenience for the rest of my life

LissyBelle

1y

How hard I work to try and act "normal" and do what everyone expects me to do

Gwilla

1y

That I'm not pretending, that I can't just stop doing it, that there's a difference between anxiety before a first date and the kind that makes me not leave my house.

pink_sky

1y

That even though they stop caring after a while, I'm still stuck in the loop.

Cimmy

1y

Just how much i overfeel, normal feelings for me intensify a crazy amount

MedicalUnicorn

1y

That I can't eat like a normal person anymore because of my chronic illness. And it sucks.

bookwormTan97

1y

How hard i work to actually get through a day. I have been told this is suicidal even though i just want to take a break. I'm sooooo exhausted... How difficult i find communication even though they think my communication skills are amazing.

europa.xavier

1y

how difficult basic tasks are for me. walking, eating, drinking water, talking, just existing is a battle everyday. im always in extreme pain. it gets so bad sometimes i cant walk, close my jaw, or hold things in my hands. sometimes i lose control fo limbs bc my muscles spasm or go numb. i get made fun of and degraded a lot for it, and its very difficult.

kateafranklin

1y

how much I miss my healthy life more than they miss the things that they could do with me.

phaed

1y

that i can’t just make it go away and if it’s hard for u to deal with me being mentally ill, imagine how hard it is for ME to live like this. people act like i’m burdening them and like i’m choosing this, why would i ever want this? why would anyone EVER want this?

Lucy4

1y

ANY of it... My list consists of; celiac disease, fibromyalgia, mitral valve prolapse/left atrium regurgitation, petit mal seizures, costochondritis, gerd, cancer twice, hysterectomy and gall bladder removed, severe anemia, ibs, h. Pylori(comes and goes), and many other physical and mental things. You get the idea. And, apparently it's ALLLLL in my head... Even with more than one drs diagnosis. 😮‍💨🤷🏽‍♀️

Tracks

1y

Everything about us

Skyblue38

1y

That I be trying my best to keep up when a pearson don't understand that I don't want to upset them

SueLaBear

1y

That I work despite being in pain because if I don't, I'm fired. But at home, I need to rest and heal not continue to work after getting off work despite the pain I'm in.

BethEntrekin

1y

That I'm not lazy, things are just so much harder for me to do.

Zebragirl

1y

How hard it is. That I don't want this but it's what I have and I want it noted. That I'm trying my best to function but I'm just faking it. It's all a disguise. And what's going on in my body is NOT normal.

theinescapable

1y

I don't actually want to get better, I'm ruining my life day by day.

trust

1y

They don't get how much personal time managing a health condition can sometimes take.🙏

HannahL

1y

They don’t get that every single day is a struggle. That you don’t want to cancel plans. You don’t want to miss events. You dread having to make those calls. But you are trying to survive.

ChaosPixie

1y

That it doesn't just "go away" with medication and therapy overnight. And that coping mechanisms only help to a certain degree at times.

sassy_hacker

1y

"I did everything you asked, why are you still so bad at everything", man I am trying I swear 😭

kk062001

1y

more than 2 people trying to give me, 1 person, constructive criticism feels like an attack. i’m all for feedback, but I don’t need a bunch of people jumping on top of me.

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