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Catslovesoup

Updated 1y ago

What specialist should I see for EDS?

What specialist should I see if I’ve been diagnosed with EDS? I have a rheumatologist, cardiologist and neurologist already. I also have POTS.

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Maeve

3y

A geneticist would be helpful and I would recommend finding an internist for your primary care provider
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Tinie

3y

I'm in the process of going to the geneticist after my EDS diagnosis. There are different kinds and some can effect things like the heart and blood vessels. So I would definitely be asking to get a referral to one
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lovingluna

3y

I got my diagnosis from a rheumatologist
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SickCrochetGirl

3y

You probably need PT to strengthen your muscles so your joints stay in place better
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Rachie

3y

I also recommend getting orthopedics for the specific joints you have problems with
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Quackers

3y

Geneticists are helpful discovering the type of EDS you have (as there’s 13 known forms) but with hypermobile eds there’s no known gene mutation so you may have to go to a rheumatologist or orthopedist to get a diagnosis. POTS is a comorbidity of EDS and can show up in any type.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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