Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Jojo1084

Updated 1y ago

What Tests Can Help Diagnose Endometriosis?

I know the only way to truly verify the location and severity/stage of my endo is to have surgery. But does anyone recommend imaging/tests of any kind (MRI?) as another way to gain insight into my specific condition? Or is pursuing more imaging options just a waste of my time? Thank you!

Can you help? Connect today

avatar

Belugabear

2y

Honestly it doesn’t change anything. If you have the symptoms and you’re confident that you have the disease all it does is confirm. Whether you’re stage one or four you need surgery for pain relief. It sucks but sadly it doesn’t change treatment. I guess it might help you select a surgeon? But then the imaging is often unreliable. I think there is nothing wrong with doing it but there aren’t a crazy amount of benefits. If you choose to do it, try to through Seckin Endometriosis Center because they have people who can read MRIs for endo more skilled than the average radiologist! Best of luck! Let me know if you have other questions or want to chat :)
avatar

Jojo1084

2y

Thank you so much. I agree with everything you’ve said. I know it’s an option to pursue more tests and imaging, just to get more info. That potential extra info would just be for my mind, to possibly better understand and explain my symptoms. But I also know that it won’t change anything or lead to any physical relief. I’m just feeling very torn about surgery right now because my husband and I are trying to conceive (just started trying recently, only one month) So hard to know what the “right” or “best” path is to take! Thank you again! 💕
avatar

Metamama

2y

I had so many tests, but they couldn’t truly diagnose without surgery. And surgery changed my life for the better pain wise. I don’t regret it at all. Best of luck to you ❤️
avatar

wise

2y

Don't bother with imagining. It doesn't show up. I had so many andominal X-rays, CT scans, even an MRI or two, AND multiple ultrasounds before my endo diagnosis, and when I had surgery they found tons of endo all up in my intestines. They may require an ultrasound before you're allowed to get surgery, but it won't show anything

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc