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alikenoelle's Post

alikenoelle

Updated 1y ago

Looking for Women with Lupus to Connect With

I want to connect with other women dealing with Systemic Lupus Erythematosus. Although I'm 8-9 years into this, it's still crazy making sometimes. I want to give advice, share my story, be as helpful as I can. I know it's hard. But we do hard things 💪🏼

Can you help? Connect today

abb311

Hi! I’m 25! I was diagnosed with SLE years ago in 2018-19 but have had symptoms since I was 8 & no one knew what was wrong with me until my kidneys started to fail 😅

karinad

Hi! I just got diagnosed in January but I've had symptoms for a few years. I'm 24

Benisha

I am 32, I have been dealing with lupus since I was 18. I got diagnosed in 2009 at the age of 19. My kidneys did not fail until I was 30…chemo did not work. I am on the waitlist for a kidney.

SaraVirginia

✋

Jocevice

I just was diagnosed last week! It’s been crazy and I have so many questions and a lot of stress I’m just trying to figure out my symptoms bc I also have POTS and EDS

karinad

Hi!! I'm 24 and just got my diagnosis on January but was diagnosed with Sjogren's last year and have been dealing with symptoms for many years

karinad

Wait. I had already commented lol. Want to start a groupchat?

tries

✋ And Thank you for sharing ❤️🙏!

Randa

What were the symptoms of kidneys failing? I haven't experienced that yet but it seems to be pretty common for us. I do have enflamed liver with elevated liver enzymes and that's got me freaking out a little

karinad

Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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Looking for Women with Lupus to Connect With