119d
0
hi! has anyone found any ways to reduce psoriasis or HS? they can really flare up and cause alot of bother!
551d
0
HS & PCOS- I know they are comorbid in many cases. They are for me. Anyone else have these two? How do they work in your body? Does one trigger the other? Are they related? I find I get some of my worse HS flares around my period. Which is never at a good time or a regular time. How do yours interact and how do you deal?
660d
1
What prescription meds do you take for your HS? What works best for y’all? I used to take Humira many years ago and it helped but it was too hard to stab myself with it. I'm now on Azithromycin only 3x a week for prevention since I'm allergic to most classes of antibiotics. And now added clindamycin lotion. Anyone use these and had luck? Or luck with anything?
678d
3
Hi all. I just officially got my hidradenitis suppurativa diagnosis about a week ago, although I’ve suspected it for a while and think I’ve had it since I was 12. I’m 30 now. Does anyone have any tips for someone recently diagnosed? I’m currently looking for good skin care products, especially a deodorant or another way to keep my underarms, where my flareups are worst, from stinking. I have odd sores all over my body, not just my underarms and other common HS places, but the doctor said something about a follicular occlusion tetras of conditions that includes HS and could explain those.
711d
0
What do you use for bandaging when it comes to your thighs? How do you get something to drain when it is being hella stubborn? Flaring to the max, out of options/not sure how to proceed.
719d
0
What do you consider to be a “flare” with your HS? Is it in one spot, or in a few spots? Or is it based on how bad or painful they are? When you’re not in a “flare” do you still have some spots or are they completely gone? For me even when I’m not having a flare, I still have at least one or two at all times somewhere on my body, they’re just less inflamed than others. Just curious about other people’s experiences.
725d
0
I was just wondering how y'all were explained what HS is cuz I still really don't understand it. I was told that the HS causes yeast, which cause boils & when they burst it causes yeast, so to me that sounds like a never ending cycle. I have been living with (or at least diagnosed with) HS for a couple of years now. I have breakouts quite frequently & use Nystatin powder but I still don't really understand it plz help.
764d
2
So I just found out HS (hidredenitis suppurativa) is caused by inflammation. And I probably can't take humira however I am watching videos on YouTube about meal prep for anti-inflammatory foods. I may have to give up a lot but it would be worth not having to live with this pain anymore. Lacey Baier with a 5 day anti-inflammatory diet meal plan is what I'm watching now. I'm hoping this helps me and maybe some of you. Gonna talk with my doctor about it too as should you. much love! may the Lord be with you <3
765d
2
Those that get HS in groin/thighs area: how do you deal with chafing, sweating in the summer, etc? I wear spandex under dresses and skirts and don’t wear shorts with super short inseams. But the spandex also makes me warmer and sweatier?? Not sure what to do. I’d like to like “air it out” more because I’m a sweaty person in general bc of medication I’m on, but then my thighs rub together which was already painful and irritating before HS started.
775d
2
Hi could anyone share some tips on how to dress area that are difficult to do so(which are affected by your HS)? context: I'm afab and I have an affected area on my chest in between my breasts and the adhesive of bandaids gets worn down by the pus/drainage and probably sweat does this as well. It's been frustrating me. I'd appreciate any advice ☺️
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What is it?
Hidradenitis suppurativa (HS) is a chronic inflammatory skin condition that is also known as acne inversa.
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