538d
2
Systemic Lupus Erythematosus (SLE)
Polycystic Ovary (PCOS)
Postural Orthostatic Tachycardia Syndrome (POTS)
Has anyone else with lupus or pcos started facing their hair fall out? It’s only a little but every time I touch my hair pieces fall out
545d
0
I have not had any sleep last night due to an arthritis flare up in my neck. It is causing severe muscle spasms in my left shoulder blade area. I took a muscle relaxer last night with no success.
549d
2
Hi! I recently got diagnosed with SLE and my dad told me about this app so I thought I would give it a shot to try to find people with the same condition :)
560d
0
I went to the pulmonologist today was told I have inflammation of my airways which is most likely caused by my lupus.. can someone message me to get my mind off of it
578d
0
Does anyone else often feel like they’re on a boat? A swaying, rocking type of feeling. No spinning but I do get dizzy sometimes if I try to lock eyes on something when it’s happening. It’s been a daily thing for me lately 😒 Annoyed
578d
0
Hydroxychloroquine
Hydroxychloroquine
Systemic Lupus Erythematosus (SLE)
Gabapentin
Gabapentin
Duloxetine
Duloxetine
I’ve been thinking of stopping all my meds. They all work and help, but I’m just so tired of taking medication. I just don’t know how that would affect me. I know I would discuss with my Dr first.
619d
1
What symptoms do your experience? I was recently referred to a rheumatologist and am trying to decipher what may be going on with me, and I believe I may have lupus. I have had several episodes per year for the last several years with seemingly random, unexplained symptoms. They sometimes seem to be triggered by stress but other times it seems completely random. Sometimes I’ll develop pain in EVERY joint that gets worse with movement, accompanied by a feeling of weakness in the joints and pain sensitivity in my joints (ex. Knocking on a door with a standard intensity and being meet with sharp, shooting pain in the knuckles). Other times I’ll have trouble breathing or heart palpitations for a few weeks. These episodes are often accompanied by what I believe is a butterfly/malar rash (though I’m not sure). Since lupus can affect many body symptoms and cause many different symptoms what symptoms do you experience? Additionally do you have any comorbidities (conditions that may be related to or worsen your lupus) accompanied with your lupus?
619d
1
Do you have a butterfly/malar rash, and if so what does it look like? I cannot tell if the red/pink on my checks is a butterfly rash or just regular blushing. It difficult to compare to photos online because obviously the photos online are going to show more severe cases. I always have a bit of natural flush on my checks but sometimes it becomes more severe, and the shape changes (from my normal circular spots on my checks to a shape more reminiscent of a butterfly rash). It almost appears as if I was wearing goggles and didn’t put on sunscreen so I got a sunburn under my eyes. It doesn’t hurt, but it does feel warm, despite not having a fever. When it does appear it tends to be accompanied with other autoimmune adjacent symptoms like joint pain. So if you do have a butterfly/malar rash, what is it like? Does it look like the severe pictures online or is it different? If you have a natural, constant flushed coloring, does the coloring or shape appear different when you have a butterfly rash?
627d
2
Currently under assessment for lupus, it’s almost certainly an immune system disorder I have. Been struggling with it for the last 3 years I think triggered by stress, my fatigue is so bad my life has basically stopped, I was surprised when my doctor suggested lupus as I’m Caucasian and have heard it’s uncommon in my race and I haven’t experienced a facial rash of any kind, but the more I look into lupus the more I relate. My main concerning symptom as of recent that lead to a lot of blood work is chest pain and tachycardia which had me in the emergency room, I’m only 19 I have very low blood pressure usually but a high heart rate and I’m just tired, want to know how to get better.
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
palpitations
Depression
Valium
Bupropion
What is it?
Systemic lupus erythematosus (SLE) is an autoimmune disease in which the immune system attacks its own tissues, causing widespread inflammation and tissue damage in the affected organs.
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