Recurrent Syncope

Sudden Onset of Symptoms - Seeking Answers

Mine was diagnosed with a tilt table test. I don’t know if you could ask for additional testing? If you are **passing out** or having issues with positional changes that’s not normal. It took me months and multiple test to finally be diagnosed. They wanted to put me on anxiety meds telling me it was in my head, it wasn’t. Hang in there and keep advocating for yourself!

One person described their worst panic attack as happening in high school during a performance where they forgot the words to a song, felt and heard their heart beating, got very dizzy and their whole body went numb. Another person had a severe panic attack in a store where they couldn't breathe and felt so overwhelmed that they thought they were going to pass out. Someone else experienced a panic attack after a family argument which led to overthinking, crying, screaming, and hyperventilating. Another individual had to pull over while driving because their vision was blurred, their head felt like it was being squished from all angles and they felt like they were going to **pass out** or die.

Some suggestions for exercising with POTS include swimming, yoga, ground exercises, seated exercises like rowing, and using a stationary bike. These activities are less likely to cause **fainting** or a spike in heart rate. It's also important to pace yourself and gradually increase your activity level. Diet changes can also contribute significantly to weight loss. Consulting with a physical therapist or personal trainer who understands POTS could be beneficial as well.

Frustrated with Medical Gaslighting and Misdiagnosis

Several individuals have reported feeling dizzy or unsteady after taking hot showers. Some suggest that this could be due to the heat causing a drop in blood pressure, leading to dizziness. Others have mentioned conditions such as orthostatic hypotension, **vasovagal syndrome**, and mental health issues like anxiety and PTSD as potential causes. It's also suggested that the issue could be related to poor air circulation in the shower area. However, it's recommended to consult with a doctor for an accurate diagnosis.