811d
1
I am 47 years old and I'm wondering if my Neurofibromatosis is going to get worse as I get older? I already notice more pain and of course I constantly find new fibromas..can anyone tell me what is going on with you and how you handle the low self esteem.
826d
0
How does this condition effect your daily life?
847d
0
Does anyone else notice more bumps at you get older or big skin tags?
854d
3
Do any of you guys get consistent Migraines, headaches that seem to never go away? Have you found anything that works I've tried everything just about and my Neurologist I'd out of idea's.
909d
2
Hey I am Andrew , I have a brainstem tumor put it me on a walker. I also have neurofibromatosis it’s a genetic disorder
923d
6
im not sure if anyone even uses this app anymore, it seems to not have many users. but the concept makes me excited!! i am struggling very badly with my NF right now and itd be lovely to talk to other people about it and just relate n stuff? ive never met anyone else with NF before
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
palpitations
Depression
Valium
Bupropion
What is it?
Neurofibromatoses are a group of genetic disorders that cause tumors to form on nerve tissue.
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213 Alikes with Neurofibromatosis (NF)
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