627d
1
I’m newly diagnosed (or almost diagnosed) with UC. Flare up started in the beginning of October and while I’m feeling a lot better now it just feels like there’s a million questions I can’t get answers to. I don’t even officially have a doctor assigned to me yet! I had a quick visit to get established with the practice, a colonoscopy, a calprotectin test, I’ve been prescribed a medication that I haven’t started yet. It just feels like I haven’t really been able to talk to anyone.
628d
0
Hi everyone, I was diagnosed with ulcerative colitis last week. This past week has been the worst it’s ever been, despite now being on prednisolone. I’m up at least 5 times every night with stomach pains and diarrhoea and I am EXHAUSTED. I’ve always had a suspicion my flare ups are highly stress related, so I think maybe the stress of the diagnosis has made things worse? Can anyone else relate to this? I’ve also recently gone through a breakup, so there are lots of thing’s changing in my life right now, which may be a contributor.
649d
0
Vitamin D Deficiency
Ulcerative Colitis (IBD) Inflammatory Bowel Disease
Irritable Bowel Syndrome (IBS)
Tofacitinib
Xeljanz Xr • Type: Oral
Hi everyone! I’m so excited to share that I just reached deep remission from severe UC I’ve been battling for 3 and a half years!!! It feels so surreal to me, but I wanted to share how I got here in case it can help anyone else!! I have been on Entyvio infusions every 4 weeks for 2 years, and have been on xeljanz 22mg daily for 1 and a half years. Things started to change once I got into the Xeljanz. I stopped bleeding within 2-3 days of initially taking it but the urgency took a bit longer to go away. I also had to do a lot of stress reduction and remove ALL veggies, seeds, and regular red meat consumption from my diet. I both wanted to encourage you with this post, and ask a question. I am now beginning to taper off of Xeljanz, and I feel like I need more sleep than usual. Is it typical to need more sleep while tapering off of medication?
671d
0
I have never been diagnosed with ulcerative colitis. Doctors say ifs either that or Chrons Disease - still unsure. What differences should I look for? The right colon gets inflamed usually showing mild-moderate colitis when a CT Scan is preformed and calprotectin is usually elevated
704d
0
This is my first post. I have mild/moderate left sided UC. Originally prescribed mesalamine both oral and enema. I think I’m one of those small percentage of patients who don’t respond well to it. Actually made it worse! Completed one course of prednisone and balsalazide (have stayed on balsalazide) and am now doing fairly well but certainly not in remission. My Doc is saying biologics may be in my future but I want to do all I can to avoid that! Recently added 2 grams of Turmeric:Curcumin to regimen and it seems to be helping. I was also going to discuss the possibility of trying Budesonide with my Doc. Any comments or suggestions would be greatly appreciated. Thanks!
719d
0
Infliximab
Crohn's Disease (IBD) Inflammatory Bowel Disease
Ulcerative Colitis (IBD) Inflammatory Bowel Disease
hi everyone! Im new to this app and I just wanted to get some advice. I was diagnosed with UC a little under a year ago and I am really struggling. I am 21 yrs old and I feel like I am missing out on so much. My entire life has changed. I cannot work and had to switch to online school because my symptoms are so severe. My best friend doesn't understand what I'm going through even though I have tried my best to explain it to her. I feel guilty that my family has to make all these changes just to make sure I am okay. I used to not have to think twice before I went anywhere and now I feel tied down because of my UC. How do you all cope with the stress of UC and feeling like no one understands what you're going through??
751d
0
Having my first flare since 2019. Looking for some kind of salty snack I can have that's easy or prepackaged (though I am trying to stay away from highly processed food). I love snack mixes, potato chips, and popcorn, but I don't feel like any of those would be good for me. Do they make frozen sweet potatoe fries? Any tips greatly appreciated.
753d
2
anyone else’s hair falling out like crazy?? i had my first flare in march and was put on prednisone. i think it started falling out during my hospital stay. i’ve been off the steroids for 2 months now because i started inflectra. i swear i’ve lost at least half my hair :( any advice???
789d
0
What happens after I tell my doctor I’m having a flare up? My dad thinks they won’t do anything. Anyone have any personal experiences? What do they do? I’ve been having a UC Flare for about 3 months now with blood and severe abdominal cramps and lack of control of movements.
808d
1
Hi everyone I have recently been diagnosed with ulcerative colitis at 16. I was having symptoms (bloody diarrhea, fatigue, and pain, waking up 10+ times a night to go to the bathroom, going 10+ times during the day and urgency) for over a month but didn’t think much of it and though that it would eventually go away ( I have other medical issues so I though that maybe it was just that).I eventually told my mom after being embarrassed and scared. We decided to go to the emergency room after not being able to get an appointment with a GI doctor for over a month. I ended up being admitted and was extremely anemic and inflamed. All of my levels were very low resulting in me having to get two blood transfusions and two iron transfusions. I eventually got a colonoscopy and endoscopy while in the hospital which was able to officially diagnose me. I started steroids right after my procedure but they didn’t seem to help much so I got my first dose of remicade. There wasn’t a huge change after the first dose causing me to get a second dose. I ended up staying in the the hospital for 12 days before finally being able to go home. I just got home 4 days ago and I am still struggling with the same symptoms. And on top of this I have missed the last couple weeks of school and I had to take some of my finals in the hospital. I also took my last two test today that I had to go in for. I still feel very fatigue and tired constantly. I have a couple doctors appointment coming up and I also have my third remicade infusion this Friday. I definitely am noticing a difference with the remicade but I definitely want it to work better because I am still having my draining symptoms. I am definitely struggling both mentally and physically during this time but I am hopeful that things will get better. Just wanted to open up to someone because not a lot of people my age talk about this and no one in my family has IBD or colitis. :)
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Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
palpitations
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Valium
Bupropion
What is it?
Ulcerative colitis is an inflammatory bowel disease characterized by chronic inflammation of the large intestine (the colon) and the rectum.
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