68d
1
What’s everyone’s favorite salty snacks? I’m trying to find new favorites to help with my electrolytes!
69d
1
Hi all .Just introducing myself. 60 y/o man suffer from chronic back pain and autonomic neuropathy. I have been given a not so great prognosis recently and I'm searching for anything that may reduce my nerve symptoms
577d
4
Do you guys find sleeping more during a flare up helps? I genuinely can't tell if it's making it better or worse lol
599d
1
Anxiety (Including GAD)
Myalgic Encephalomyelitis
Disorder of Autonomic Nervous System
Fibromyalgia (FM)
Does anyone know of a heart rate tracker watch that isn't subscription based and doesn't have all the bells and whistles?? I literally just want something to track my heart rate, I don't need to have it also show my texts, tell me how to exercise, track my location, and have Alexa on it plus I need to pay $80 a year to use anything useful. Does such a thing exist or do I have to just take the loss and buy a fitness tracker?? If anyone has suggestions I'd love to hear your experiences with trackers
643d
0
this past week i’ve been in a small pain flaire in my entire back and have been completely fatigued. most ibuprofens don’t help me at all and the only thing that ever helps is laying down but i can’t lay down most of the time so it makes the pain worse. anyone have any tips or suggestions for what they’ve tried to make the pain and fatigue more tolerable? my body just feels so bad which makes me feel bad mentally too. it’s so exhausting and i never know what to do when i feel like this.
683d
5
Disorder of Autonomic Nervous System
Hypermobility Syndromes
Postural Orthostatic Tachycardia Syndrome (POTS)
Cardiac Dysrhythmias
Having been chronically ill for a decade now, I have always pushed myself to keep up with those around me who are healthy. Starting at age 12 my mantra became 'I can do hard things'. Recently, I have been encouraged by my doctors to work on listening to my body and resting when I need to, but years of that mantra came with automatic guilt if I choose NOT to do hard things. Today is a bad fatigue day and I've been laying down in compression leggings most of it. I am not lazy, I am not a bad person, I am disabled. My body needs extra rest and that is okay. If nothing else, I hope someone else sees this and is reminded that it's okay to give yourself a break. ❤️
687d
2
Ehlers-Danlos Syndrome (EDS)
Disorder of Autonomic Nervous System
Postural Orthostatic Tachycardia Syndrome (POTS)
Having my tilt table test tomorrow! Any tips? During today’s physical exam with the laying and standing bp check, my bp dropped 20 points when standing. He said that was interesting because it did not fit the POTS criteria as well having a high heart rate while sitting did not fit the criteria. Any thoughts of what it could be or questions I should ask him tomorrow?
727d
2
This week, for the first time in my life, I had a doctor look at ALL my symptoms and realize they were almost all connected. I have had swelling issues, cardiac arrhythmia, tachycardia, issues swallowing, fatigue, headaches, the list is long and tedious. But my cardiologist looked at all of it and said to me "Huh, has anyone ever told you it's not your heart that's the problem?". I was incredulous as I've always been told I just shouldn't drink caffeine and try to lose weight. She went on to say that all of the issues I have are regulation issues (other than the hypermobility) and that I actually have dysautonomia. The treatments for the symptoms are the same, but to realize that, at 22 years old I don't actually have multiple different issues, but one overarching disorder is somewhat relieving.
728d
3
heyo! got this app to see if other people who have autonomic dysfunction exist, my doctors know I have it they just dunno which specific type. I'm trying to get a service dog too rn
738d
5
today for the first time in awhile i did some mild exercise to see how my body will react. it was basically what i expected and similar to before. i sometimes make myself think i’m faking having dysautonomia(even though im definitely not) because so many of my symptoms don’t show on medical tests and very few believe me. does anyone else feel the same or have the same experience regarding their symptoms and medical tests?
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Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
palpitations
Depression
Valium
Bupropion
What is it?
Autonomic neuropathy refers to damage to the nerves which participate in involuntary body functions.
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