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My epilepsy used to be well controlled with meds but over the past 6 months I've had 12 seizures with a much less obvious warning aura. Now I'm scared to go out and feel very low. I've been told by my consultant that this can happen sometimes with epilepsy but I don't like not knowing the reason for it. I'm a doctor myself so always jump to the worst case scenario! Can anyone share some tips for managing this anxiety? I'm on meds and tried CBT but very hard to dismiss the worry of having another seizure!
550d
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Hi, so bit of a long question. I was diagnosed by the GP with pseudoseizures, but a councillor told me it was dissociation. Basically i get extremely tired to the point i cant keep my eyes open, my body feels really heavy and i cant communicate verbally. It also comes with this feeling that is really hard to describe, almost like a pulse/wave through me or intense pins or needles? Its hard to explain sorry, almost like im falling alseep and my body is trying to jolt me awake. Nothing helps except sleeping until it goes away and occassionally ice on my body. I just wonder if anyone else feels like this or knows which one it might be.
575d
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tw! I am describing my symptoms so I am trying to figure out my (maybe) seizures I've been talking to friends who are diagnosed with psychogenic seziures and explaining my symptoms pounding headache in the back of my skull before during and after (it almost feels like the shaking originates there), shaking legs hands and head, fuzzy or no memory of the event. I've only had a few that I can remember but I've been an extreme stress lately and haven't had any and I don't understand why. I am trying to see if I can get a diagnosis or at least some kind of testing.
628d
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anyone who also has non epileptic seizures, have you found a trigger/s? i can't find one, the only thing i can kind of find is if im feeling a lot of any emotion. whether i'm really happy or really angry or really excited. anybody else?
664d
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Does anyone else suffer stress seizures from smoking cannabis?
727d
2
hi 💖💖 im curious does anyone experience symptoms like this before an absence? ive noticed these the most and im at roughly 3-5 a day 😠• disorientation • being nonverbal • weird pit feeling in stomach?? kinda like after you eat too much • ear ringing 😩 • dizziness almost in a way that im going to fall over but i can’t • sounds around you being muffled • sudden tiredness i’m working on treatment with my neurologist currently and im being recommended a service dog by some of my friends who share similar issues who have one. it’ll also be for my anxiety disorders and whatnot. would this be beneficial? please let me know 🫶
729d
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How do you tell when a seizure is about to happen? it seems to be different for me every time and i can never tell if i’m about to have a panic attack or a seizure.
731d
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How do you deal with the seizures and stuff related to fnd? I was recently diagnosed and was told cognitive behavioral therapy was the only way to "manage" and there's no treatment, and it's been really hard on me.
756d
10
I just wanted to post some excitement. After not driving for 10 months due to PNES, I finally drove. I'm 3 months seizure free!!! 🙌 Progress happens!!!
760d
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Cataplexy & Narcolepsy
Tourette Syndrome (TS)
Disorders of The Nervous System
Psychogenic non epileptic seizure
I know this is likely just a shout into the void but... can someone- anyone with nonepileptic seizures reach out or comment..? I found out via and EEG that my seizure fits aren't epileptic, but I'm now trying to gather as much data as I can. from what conditions it could be that's been plaguing me for years, to symptoms I have that could be linked to it, I'm writing down AS MUCH AS I CAN for my meeting with the neurologists PA in a month and a half... but I need help me there's only so much I can do on my own
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
palpitations
Depression
Valium
Bupropion
What is it?
Pseudoseizures, or psychogenic nonepileptic seizures (PNES), are seizures that do not involve changes in brain activities.
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Psychogenic non epileptic seizure.
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