540d
0
Has anyone been diagnosed with Sjogren’s after getting a negative antibody blood test? My dr told me I don’t have it but I have many of the symptoms (dry eyes and mouth, always thirsty, shoulder pain, pain under the ear/jaw, severe fatigue). I’ve read that a stool test and lip biopsy and can also be used to diagnose it, so I don’t think it should be ruled out just because of a blood test.
592d
0
Hi, nice to meet y'all. Sorry it might take me a bit to open up, but I'd like to try! I've been having a hard time finding people to relate to. So, icebreaker: If you use a cane, what kind? And if a a young cane user, do you often have to deal with bullsh*t questions/judgement about it?
705d
1
Since I first started showing symptoms for Sjogren’s about 9 years ago, turns out it’s secondary to Anklosing spondylitis. My SS started with VERY swollen glands, it has now escalated to much more painful symptoms in the throat and under my tongue. It feels like pins and needles along with a tightness and unless I take prednisone this is a daily occurrence for me and it can be quite painful. My glands still swell but not as severe as early on and stay swollen much of the time. I’m currently taking hydroxychloroquine and l lueflonomide, and Cimzia,for the SS but really the only thing that seems to help is prednisone. I recently fractured a few bones in my foot and dr believes prednisone is the culprit. Please, if anyone has any suggestions I would truly appreciate it. Does anyone experience similar symptoms?
715d
5
i was just officially diagnosed today and i feel so empowered. I'm 20 and have had debilitating fatigue and unexplained fevers for years. i have hope now! (and i now understand why contact lenses suck for me! lol)
760d
0
Seeing a new rheumatologist tomorrow and I’m super nervous but excited (new doc = could be amazing or could be the opposite lol)! Any advice?
814d
4
Has anyone gotten diagnosed with Sjögren’s Syndrome at a young age? I’m 22 years old and I also have Mixed Connective Tissue Disease. My maternal grandmother also has it. I just feel alone.
829d
1
What are your syptoms with your Sjogren's? I have very dry eyes which I use Colidial Silver. I have a over production of saliva which makes me gag often. Any suggestions?
832d
1
I've hit a stall in getting diagnosed. I have Sjogrens which means I have another auto immune disorder but don't know which one. I also have a lot of neurological symptoms. Does anyone have any advice? We're really struggling.
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Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
palpitations
Depression
Valium
Bupropion
What is it?
Sjogren's disease (also called Sicca Syndrome) is an autoimmune disease - a disease in which the immune system attacks body tissues.
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